Search results

I am wondering: how do you go from disruption of these proteins to an illness like ME/CFS? Ephrins play a role in the neuronal dendrites and synapses and that seems like it might be a way. Ephrin regulation of synapse formation, function and plasticity...

It's possible that Garner had real ME and that he recovered from it in a relatively short amount of time. Maybe the prevalent view of ME as being a lifelong problem 95% of the time is not correct. How do you distinguish between a bad case of PVFS and ME anyway? From what I remember Ramsay...

It's true, but just as we should not assume that the ME/CFS-like long covid cases are ME/CFS, we should also not assume that they are distinct. They could be the same illness. The question will need to be clarified with research.

CGA and FSHB constitute follicle stimulating hormone (FSH). I had FSH tested and it was very low, near zero if I recall correctly.

A dysregulation of this sort might also explain a symptom that is rarely discussed in the literature: episodes of hypoglycemia without having (according to usual tests) diabetes, pituitary, adrenal or thyroid disease. Also changes in water balance during PEM.

It's nice to read a paper that is so well written. Very professional (unlike some other things published recently). It also reminded me that my pituitary gland is squished. I wonder if that's a risk factor for the "vicious cycle". This cycle is observed in critically ill patients who fail to...

I can't watch it because I'm not in the UK. Good. I wanted to take one for the team and watch it so that others don't have to, but secretly I'm glad I can't. For those who watched it, how was it? Did they only talk about anecdotes? Did they mention the changes to the NICE guidelines? Did...

Can we watch this talk on the BBC anywhere?

I read that he was on the BBC this morning, talking about how he recovered from CFS. Seems like the anti-ME/CFS propaganda has started.

So nice to read this

Presumably they want to hold him because he is a danger to himself with his (from their point of view) irrational belief to suffer from food intolerances and ME.

In my case specialists did order all the tests that might actually have shown something. The first suggestion it might be ME/CFS came from an endocrinologist who also ordered an MRI to exclude other things. Before that the GP only ordered repeated complete blood counts and gave unwanted...

They might belong to a subculture of medicine that believes in the modern equivalent of shamanism. However a sudden onset of something like ME/CFS is difficult to accept. We see that people often react to it with denial and magical thinking to shrink the problem to something they can endure more...

I remember that one of his earlier comments revealed he had inaccurate views on mitochondrial abnormalities in ME/CFS. Maybe that he misunderstood because he had so little time to take in and make sense of information, or some patient who misunderstood passed along incorrect information.

I am not sure to what degree this is even Whitney communicating. I believe there is a person in the middle that is translating in some way.

The few reactions I've seen were all very negative. e.g.

I have noticed that when my health improves, I start feeling like I was exaggerating my ME/CFS and that it wasn't really as bad. Usually I get worse again within a day or two.

@Jonathan Edwards did you see that Greenhalg suggested on Twitter that we should do a clinical trial of GET for longcovid? She started mass blocking ME/CFS patients afterwards.

Liste to patients. Unless the patients disagree with you. Then they are trolls and should be blocked.

This post and following discussion moved from this thread:Paul Garner on Long Covid and ME/CFS. BMJ articles ________________