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  1. Hoopoe

    Dr Byron Hyde - Canada

    I read the chapters that are available and it's unprofessionally written. There's also no data or references for many of the claims he makes.
  2. Hoopoe

    Local immune response to food antigens drives meal-induced abdominal pain, 2021, Aguilera-Lizarraga et al

    Mystery illnesses in young women could be in part due to cosmetic product toxicity. It's funny how mouse models of human disease are considered highly unreliable, but animal models of toxicity are somehow considered safe and reliable.
  3. Hoopoe

    Exercise modifies glutamate and other metabolic biomarkers in cerebrospinal fluid from Gulf War Illness and [ME/CFS], Baranuik et al, 2021

    Carnitine is the only thing that seems to increase my ability to function somewhat.
  4. Hoopoe

    USA: Congress Approves Over a Billion Dollars to Study Covid-19

    Let's not be bitter. Long covid deserves funding and so do we. This will likely help us too.
  5. Hoopoe

    The possibility of autoimmunity or auto-reactivity in ME/CFS

    The spleen also participates in the regulation of blood volume. If there was some abnormal T cell thing going on in the spleen, would it affect blood volume?
  6. Hoopoe

    The difficulties of conducting intervention trials for the treatment of [ME/CFS]: Expert testimony to NICE guidelines committee by Jonathan Edwards

    I hope we will also see an influential article on the economic losses caused by ME/CFS and the extreme foolishness of not even trying to address this. We've had some academic papers but we need something for a broad audience.
  7. Hoopoe

    Making the biopsychosocial model more scientific—its general and specific models, Smith, 2021

    Apophenia is the tendency to perceive meaningful connections between unrelated things. Especially when the person is told there is some hidden meaning to be discovered. That would seems to be a serious problem in this approach.
  8. Hoopoe

    The difficulties of conducting intervention trials for the treatment of [ME/CFS]: Expert testimony to NICE guidelines committee by Jonathan Edwards

    @Simon M there is an error in the picture. It says "blinded trials, subjective outcomes" when it should say "unblinded trials, subjective outcomes".
  9. Hoopoe

    Pain “Relief” by Frontal Cingulumotomy. Foltz & White, L. E. (1962).

    Had she continued to complain about pain, they would have cut out more of her brain. No wonder she was miraculously cured.
  10. Hoopoe

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Will any CBT/GET illness model believers change their minds due to covid? I'm constantly hearing from covid and long covid patients themselves all the things we patients have been saying. They just want to get on with life but find out empirically that they can't. Reducing activity levels is a...
  11. Hoopoe

    How were subsets in other diseases identified?

    There are 4 types of multiple sclerosis. How was it discovered that there were 4 types? It's alo well known that there are two types of diabetes.
  12. Hoopoe

    EU: News from the European ME Coalition (EMEC)

    Do you know anything about how the EU might intend to fund research into under-investigated conditions? How can we prevent that they will fund people like Fink?
  13. Hoopoe

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I too suspect that long covid may well fade away. Classification according to the damage done (lung scarring, etc) is superior to a broad label like long covid. The patients that have such problems will be diagnosed with that. That will leave the ME/CFS-like patients where it's not clear what is...
  14. Hoopoe

    Reversible widespread brain 18F-FDG PET hypometabolism in [CFS] treated by hyperbaric oxygen therapy, 2021, Guedj et al

    Is this promising enough to do a proper study? The brain imaging was done before and after treatment. That means the improvement in hypometabolism could last only for a short time. Treatment is not cheap but it would be worth it if it gives long lasting benefits. On the physical subscale of...
  15. Hoopoe

    Developing a clinical prediction rule for repeated consultations with functional somatic symptoms in primary care: a cohort study, 2021, Holtman et al

    These studies demonstrate just how worthless this entire line of research is. Total idiocy. Maybe these women have unexplained illness because the idea that women are hysterical has prevented the explanations from being found. Maybe they don't move much because they are ill. Maybe they are...
  16. Hoopoe

    Fibromyalgia Wikipedia Article and Reference Fraud

    If someone asked me what fibromyalgia is, I would say it's an illness with widespread constant pain, possibly resulting from injury to the nervous system. With a high proportion having small fiber neuropathy. How accurate is this? And what one impression does a reader get from reading wikipedia?
  17. Hoopoe

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I suspect the themes in his article will be the same as the ones in his tweets: harmful short-termism, serious problem not acknowledged, need more research, patients need help.
  18. Hoopoe

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I admit that I'm slightly worried that Monbiot will have the best intentions but make some mistake due to the complexity of the topic. Hopefully he'll send the article to an independent expert for review before the publication.
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