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What appears to be happening is that patients are naturally recovering and the intervention is being given credit instead.

I have had similar thoughts about activity either depleting something good or causing accumulation of something bad. It's not that I'm unable to exert myself, it is just abnormally stressful for the body to do so. Usually my PEM is delayed until the day after which makes me think that something...

Is anyone still skeptical that long covid would help ME/CFS gain visibility and credibility?

Does cold water immersion have merit as treatment for poor microcirculation?

There is a third possible explanation which is that they did listen and interpreted what patients were saying as irrational belief and catastrophizing.

"A self-management program including eight biweekly meetings of 2.5 hours duration. The control group received usual care." Biweekly, so twice a week or every two weeks? If twice a week I can see this treatment easily being counterproductive on the basis of the exertion alone. I don't have a...

Yes that's what I was saying. The illness became so marginalized for a long time that the conditions for good biomedical research simply weren't there. At least this is a possible interpretation and believing that it's not correct means believing that BPS ideas about there being no biomedical...

Most of these 9000 papers are small poor quality studies, likely due to the BPS approach.

Is there a disease where this is known to occur?

The something in the blood could be the product of some part of the immune system that we didn't know existed. Fluge and Mella knew before others that there was something in the blood due to the cell culture experiments they did. They thought that could be an antibody that interfered with...

Two areas that seem promising for the purpose of identifying subgroups in ME appear to be the responses to CPET. Maureen Hanson showed some unpublished data a few years ago of patients having with PEM having additional unsual responses to the 2-day CPET, like for example not having the expected...

Something that will make it difficult to recognize types of ME is the symptoms changing somewhat through the year and over time. Some of it seems to be caused by seasonal and weather changes. Some of it appears to have no apparent cause. It's all further confused by symptoms also changing in...

Can you provide a link to that comment?

We have a few newpaper / online magazine articles every year with headlines saying scientists have finally proven ME is real.

This is so vaguely worded that it's not clear what is meant. Rather than a new discovery, it could just be how the journalists describes the reduction in the citric aid cycle (also known as TCA or Krebs cycle) that has been found in Whitney. Davis showed this years ago at a conference.

Interesting.

Awful. In the first years I often felt like I was well on the way to getting better, only to relapse again.

That's true and constructive criticism.

I was about to add that it must also have been a shock to get long covid and experience not only a serious uncontrollable illness but also encounter indifference and a healthcare system that is unprepared. The priority must have been to draw attention to what was happening rather than publish...

There seems to be a cruel bias in medicine against illnesses like ME/CFS and long covid. They're underfunded and neglected so they struggle to produce the high quality research that is needed to gain wider credibility. The not so reliable research can easily reinforce negative views against the...