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  1. Yann04

    Long COVID among Latino Patients of Two Federally Qualified Health Centers in Washington State, 2025, Rachid Zaim et al

    Long COVID among Latino Patients of Two Federally Qualified Health Centers in Washington State Can’t see an abstract personally. Web | DOI | PDF | Journal of General Internal Medicine Seems paywalled but there also seems to be an official link to a summary from the university...
  2. Yann04

    MDPI: POTS, ME/CFS and Long COVID: Recent Advances and Future Direction

    Appreciate the Issue but can’t help but feel like 2600 CHF is a lot to ask. (I think thats like what maybe 3k USD).
  3. Yann04

    CrunchME

    https://crunchme.org/visuals/2026-01-01-01
  4. Yann04

    Trial Report Patient-reported improvements from use of IMC-2 alone and IMC-2 and Paxlovid® in a Long COVID cohort: a case series, 2026, Pridgen et al

    Apparently the Pharma company + Putrino is actually planning this: https://finance.yahoo.com/news/pridcor-therapeutics-advances-shield-study-150700324.html
  5. Yann04

    Is it beneficial to engage with the BPS proponents?

    I think this forum needs proper long term data protocol in place (I dont know what the current backend/database protocol is). We have surely one of the largest archives of the Psychobehaviouralists in ME/CFS distributed in all our public (and some private) threads.
  6. Yann04

    The Sick Times: A journalist-founded website chronicling the Long Covid crisis

    They are hiring a podcast/social media producer Non instagram (ie. privacy friendly) link: https://imginn.com/p/DTNvTnAEVh5/
  7. Yann04

    Preprint Percutaneous Auricular Nerve Stimulation for Treating Post-COVID Fatigue (PAuSing-pCF), 2026, Germann et al

    That’s a very very large threshold for minimum adherence. It will very likely already self select for people who believe it helps.
  8. Yann04

    Assessing DSM-5 criteria of somatic symptom disorder in medically hospitalized inpatients: A cross-sectional analysis 2026 Schaefert et al

    If they can’t fix it, and it’s not about to kill you. Might aswell not exist. Suzanne O’ Sullivan argues that we shouldn’t even be diagnosing illnesses we can’t treat. It just promotes distress might aswell gaslight the person into thinking they’re fine. The distress of no one recognising your...
  9. Yann04

    ME/CFS epidemiology - early recovery (recovery in the first two years after onset)

    So we both followed that Trigger -> Upwards trend Something changes (for you second trigger) -> Downwards trend with very little upwards
  10. Yann04

    ME/CFS epidemiology - early recovery (recovery in the first two years after onset)

    I had a course somewhat like this. Maybe more like Trigger -> Moderate (3 Weeks) -> Mild (3 Weeks) -> Practically Recovered (3 months) -> Mild (8 months) -> Moderate (1 month) -> Very Severe (3 months) -> Extremely Severe (2 months) -> Very Severe (2 years) You can probably guess when I...
  11. Yann04

    Keeping clean when severe - a thread for tips

    I do this basically I don’t have energy to fully cut my hair but everytime I do a bathroom trip on a good day I tie up a certain bit of hair and just do one simple chop
  12. Yann04

    ME/CFS epidemiology - early recovery (recovery in the first two years after onset)

    Theres also a lot who had the sort of Trigger -> Severe -> Moderate -> Mild -> Very Mild course while you hear a lot of people who are severe long term paradoxically have a sort of Trigger -> Moderate -> Mild -> Big Crash to Severe (this is purely anecdotal)
  13. Yann04

    Feeling worse from oversleeping—poll

    For me sleeping long coincides with feeling less wired ie. “fake energy” so I feel groggy and slow and foggy and generally more tired. But my PEM threshold is way higher than if I just slept a couple hours. In that I can do more before I get warning symptoms and pay for it. Also in my head I...
  14. Yann04

    FND Nope

    What a gem. I think this website’s author would enjoy this forum! (Or given how much they’ve been through the FND literature they might have already stumbled upon it).
  15. Yann04

    Keeping clean when severe - a thread for tips

    Noticed this too sometimes. I wonder why.
  16. Yann04

    Examples of auto immune/immune mediated diseases with different responses to meds by sex?

    For anyone copying LLM responses in future you can specifically ask the Chatbot “Plaintext — no markdown formatting” to prevent this.
  17. Yann04

    Open Norway: Plasma cell aimed treatment with daratumumab in ME/CFS (ResetME) - Haukeland University Hospital

    Yeah if the Documentary is anything to go by for Ritux they knew basically 20 mins after unblinding that there was no effect.
  18. Yann04

    Keeping clean when severe - a thread for tips

    @hotblack if you have energy to explain I’m not sure I understand how saline water differs from freshwater?
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