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  1. Andy

    Difficulties encountered by long COVID patients in the Belgian health system 2022 Kohn et al

    Abstract Introduction: After contracting COVID-19, many people have continued to experience various symptoms for several weeks and months, even after a mild acute phase. These people with 'long COVID' faced difficulties when confronted with the healthcare system. Purpose of research: In order...
  2. Andy

    Dr Karl Morten - UK researcher based at Oxford University

    From Twitter. "Urgent, please forward Our new Raman diagnostics paper is ready to submit. It has taken 12 months but now includes 98 subjects and we can assign unknown samples to disease and control groups with 90% accuracy. The study builds on our previous paper" "Our key researcher is out...
  3. Andy

    ME/CFS Research at the Quadram Institute, Norwich, UK

    Dr Katharine Seton receives funding to expand ME research "Katharine Seton from the Quadram Institute has been awarded a Solve M.E. Ramsay Research Grant to better understand premature ageing of the immune system in people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The...
  4. Andy

    USA: The Long COVID Alliance (set up by SOLVE)

    The committee has agreed to add the forum's signature to this letter that the Long Covid Alliance is coordinating, that asks for the NIH to reveal what funding will be made available for Long Covid research in financial year 2023...
  5. Andy

    Three-month symptom profiles among symptomatic adults with positive and negative SARS-CoV-2 tests: a prospective cohort study from the INSPIRE group

    The 'screener' comes from, Psychometric properties of the CDC Symptom Inventory for assessment of Chronic Fatigue Syndrome which says "Short Form of the CDC Symptom Inventory We also explored the possibility of deriving a shorter version of the Symptom Inventory that would be a reliable and...
  6. Andy

    NIH Recover Initiative—petition against bogus treatments

    "Please sign our petition to demand that the US National Institutes of Health block plans for Long COVID research studies on debunked, harmful methods and step in to ensure a strategic, well-funded effort to find real answers. Here's what's going on: The RECOVER Initiative was funded by the US...
  7. Andy

    Podcast BBC OU: The misdiagnosis that sent me to psychiatric hospital

    Leschziner crops up on a few threads here, Pushing FND, Phantoms in the Brain - BBC radio programme on 'Functional Neurological Disorder' and in these as well Autoimmune Encephalitis - Overlap of symptoms with psychiatric diseases BBC World Service programme on senses - woman who lost balance...
  8. Andy

    The argument that Covid doesn’t cause ME because they have separate ICD/WHO codes

    The title doesn't suggest "LC should have the same ICD/WHO code as ME" though. The title is explaining that someone people have expressed the opinion that because Covid has its own ICD/WHO code, it then can't cause ME, because ME has a different ICD/WHO code.
  9. Andy

    Clustering Analysis Identifies Two Subgroups of Women with FM with Different ... Features ... 2022 Fernández-de-las-Peñas et al

    Full title: Clustering Analysis Identifies Two Subgroups of Women with Fibromyalgia with Different Psychological, Cognitive, Health-Related and Physical Features but Similar Widespread Pressure Pain Sensitivity Abstract Objective Since identification of groups of patients can help to better...
  10. Andy

    Post-acute sequelae of COVID-19 infection 2022 Kertes et al

    Highlights: • Higher post-acute depression/anxiety, DVT & fibromyalgia among COVID-19 patients. • Higher lung disease and sleep disturbance, when acute-phase hospitalized included. • No higher risk observed for CVA, MI, HTN, AKI, IHD or diabetes. Abstract To determine if people infected with...
  11. Andy

    Functional Neurological Disorders - discussion thread

    The itching caused by increased bilirubin levels that I experienced a number of years ago was very much associated with those bilirubin levels, when the levels reduced the itching disappeared. The author. "Barbara Bolen, PhD, is a licensed clinical psychologist and health coach. She has written...
  12. Andy

    Assessment of early and long-COVID related retinal neurodegeneration with optical coherence tomography 2022 Dağ Şeker and Timur

    Abstract Purpose The aim of this study is to investigate short-term and long-term effects of coronovirus 19 disease (COVID-19) at inner and outer retinal layers of patients recovered from COVID-19 with Spectral Domain Optical Coherence Tomography (SD-OCT) and compare these to healthy subjects...
  13. Andy

    Pulmonary Recovery 12 Months after Non-Severe and Severe COVID-19: The Prospective Swiss COVID-19 Lung Study 2022 Lenoir et al

    Abstract Background: Lung function impairment persists in some patients for months after acute coronavirus disease 2019 (COVID-19). Long-term lung function, radiological features, and their association remain to be clarified. Objectives: We aimed to prospectively investigate lung function and...
  14. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 19th Dec. https://www.facebook.com/sci4me/posts/pfbid02FzPEJiGXSizCTk9HSN6Ji95pR3PReMNYfrzdMtXtNGir4rDwepcDuivNDFgNgtrEl and published papers thread. https://www.facebook.com/sci4me/posts/pfbid0jABGGEEnKg9R4ZfxCTv54xmZ9dhLU2g65h8YSut9WvFgUdESym5qETpXtoX9dxzWl
  15. Andy

    Long Covid in the media and social media 2022

    Patient perspective: A long journey to long COVID https://www.thelancet.com/journals/lanres/article/PIIS2213-2600(22)00499-4/fulltext
  16. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    The sample processing centre's operational issues extend beyond booking in samples to completing the DNA extraction process itself. As far as we can tell, everything is just taking far longer than they originally promised us; they have only processed a portion of the backlog that built up so far...
  17. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    The top result from a Google search on "gwas thyroid disease", Genome-Wide Association Studies of Autoimmune Thyroid Diseases, Thyroid Function, and Thyroid Cancer Our target date is as soon as possible, balanced against wanting as many samples to analyse as possible. As I understand it Chris...
  18. Andy

    Values and value in patient and public involvement: moving beyond methods 2022 Laidlaw and Hollick

    ABSTRACT Patient and public involvement (PPI) in research has evolved over recent years, yet it often remains an ‘optional extra’ and, in some cases, tokenistic. Discussions are often focused on processes and methods, and are yet to make PPI the norm; we argue that the conversation needs to...
  19. Andy

    Role of social media use in onset of functional gastrointestinal disorders in children 2022 Cinquetti et al

    Abstract The use of social media has increased considerably in recent years. However, these tools are not always used consciously, and the stress that can result from their inappropriate use is often underestimated. Children, who tend to be heavy users of social media, are exposed to risks...
  20. Andy

    Can Exercise Affect the Pain Characteristics in Patients with Fibromyalgia? A Randomized Controlled Trial 2022 Vrouva et al

    Abstract Exercise is often recommended for fibromyalgia. The aim of this study was to investigate the possible influence and change in the pain characteristics of fibromyalgia patients when breathing exercises were added to their exercise program. A total of 106 patients were included and...
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