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Selma Blair: 'Multiple sclerosis took my career down' "Blair had experienced fatigue and speech disturbances since her youth, but doctors took many years to establish what was wrong. Her unexplained health issues led to years of feeling low but she says she kept them secret. "I was ashamed...

As discussed here, From academic success to cognitive disability

Abstract Importance: Fibromyalgia is a complex chronic pain condition for which effective nonpharmacological treatment interventions are lacking. Objective: To explore the effects of an occupational therapy intervention for fibromyalgia on client-reported outcomes of pain interference...

This is my experience as well, on one of my worst days recently it cheerily told me I was doing the best that I have done so far. It almost needs a way to for the user to feedback everyday on how much the apps score matches their experience.

My subjective impression is that Spanish fibromyalgia research is heavily BPS based as well.

Charles Shepherd is referenced at the bottom of the article, implying he is the author of the commentary.

The corresponding author, Gabriella Bernhoff, is listed as being affiliated with the ME Centre, Bragée Clinics, Stockholm, Sweden.

Abstract A dysregulated autonomic stress physiology is hypothesized to play an important role in the etiology and perpetuation of somatic symptoms that cannot be (fully) explained by an organic disease. The aim of this study was to focus on the role of the respiratory system. We examined...

Abstract Wearable devices can capture unexplored movement patterns such as brief bursts of vigorous intermittent lifestyle physical activity (VILPA) that is embedded into everyday life, rather than being done as leisure time exercise. Here, we examined the association of VILPA with all-cause...

Highlights • Fibromyalgia represents a convenient point, defined for clinical and heuristic purposes, on a continuum of physical and psychosocial distress. • Pain and non-pain variables change linearly over the full range of the fibromyalgia symptom continuum (polysymptomatic distress (PSD)...

Full title: Effects of a concurrent training, respiratory muscle exercise and self-management recommendations on recovery from post-COVID-19 conditions: the RECOVE trial Abstract The aim of this study was to determine the effectiveness of physical exercise, respiratory muscle training and the...

INTRODUCTION “Long COVID” is defined as symptoms that persist 12 weeks beyond the acute phase of the coronavirus-2019 (COVID-19) infection and is estimated to affect 3.0% to 11.7% of the UK population. Symptoms include headache, myalgia, fatigue, and loss of taste and smell.1 Parosmia can...

Abstract Background The COVID-19 pandemic has given rise to an increasing number of patients with ‘long COVID’. Long COVID is the persistence of symptoms for weeks or months after an infection by SARS-CoV-2. It often impacts on the professional life of affected people. Aims The aim of this...

Full title: Prevalence and severity of symptoms 3 months after infection with SARS-CoV-2 compared to test-negative and population controls in the Netherlands ABSTRACT Background This prospective study assesses symptoms three months after SARS-CoV-2-infection compared to test-negative and...

Abstract Background Fatigue is emerging as a major public health problem that is highly associated with poor health-related quality of life and disability. Among adults, fatigue has become increasingly common because of workload or lifestyle changes. This study aimed to cross-culturally adapt...

Also probably worth pointing, EMEC in one of their tweets points out that the program aims to fund approx 4 grants with 6 to 7 million euros each. 6 million euros is roughly 5.1 million GB Pounds or 6.3 million US Dollars. For comparison, DecodeME was awarded 3.2 million GBP, and the NIH...

From Long Covid Doctors for Action's Twitter bio, "A campaign and advocacy group committed to campaigning for UK doctors with post-acute #Covid complications and better workplace protections". Seems a weird objection when their first posts are totally in line with their stated aim. And the...

Well done to Evelien and all involved with EMEC, this is a great result! Unlike some, I appreciate that we can't go from nothing to everything in one step, as much as I would like that to happen, so while I would like to see an ME/CFS exclusive pot of money that is far larger than this, I can...

In what way?

All we are doing at this stage is presenting preliminary data, and our focus has been on launch and recruitment, so my awareness of what additional comparison with previous cohorts or calculations to show how representative our cohort is, is frankly non-existent at this stage, so I'm afraid I...