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If anyone was attempting to brainwash the elderly with femoral fractures into shaming themselves for not walking around as if their femoral fracture didn't exist then we would have a valid comparison. What bothers me is that we don't have a similar uproar about such a blatently stupid thing to...

Sad that she thinks this is without precedent, especially when she was given a heavy clue in the question. I'd give her one out of three for that answer.

George Monbiot cleverly avoids the word "psychological" in the above section, and in the whole article. Which doesn't allow anyone to come back with that nonsense about psychological v. physical, or psychological illnesses being stigmatised by ME sufferers. Instead he uses "psychosomatic"...

Time to try that spoonful of marmalade ...

I can't even have a bath now, warm water makes me so dopey. It's a shame, because I used to enjoy wallowing in a hot bath, but I haven't had one in the last 7 years, just not worth the risk. As for swimming, in my first year of ME I managed a very leisurely swim in the sea in Italy and enjoyed...

When I was healthy I used to find the opposite, on days when I did sport, I needed 1 hour less sleep that night. I put it down to healthy tiredness leading to a better quality of sleep. With ME I haven't, until very recently, had many days where the difference in activity has been big enough to...

Me too. I have also just noticed that I have no lunula, I'm sure I used to have. I'm also sure my fingers are a little more wrinkly than when I got ME 7 years ago, and my hair is thinner.

Sleep hygiene seems to be another area where common-sense universally accepted recommendations have a very weak evidence base. According to Wikepedia: https://en.wikipedia.org/wiki/Sleep_hygiene#Effectiveness So even if the technology improves and sleep trackers get better, what's the point?

I stopped reading there. Sadly 2 words in isn't my record for deciding not to carry on reading a BPS paper. To be fair I have an analogous test for categorising BPS papers, they don't really stand a chance either.

I've just sent this to a friend of mine. It's just right in terms of length and detail, any longer and people wouldn't get round to watching it, but everyone has 3 minutes.

hyperbaric oxygen therapy was recommended to me by a friend when I got ME, and there's somewhere local where I could have it. I looked into it and decided not to for some reason. Can't remember why, but my past self will have done just a good a job of looking into it as I could do now, so I'll...

It's on Audible (5 hours) for 30,95 euros, or for 9,95 as part of a subscription.

May 2016 Ron Davis “I think that we are very close now to finding a molecular diagnostic marker.” (At around 10:00) Aug 30th 2016 Janet Dafoe “We're going to END ME/CFS!”...

In my seven years of ME I have seen many superheroes, messiahs and would-be leaders come and go. Most of them have been a complete disappointment. Some of them have had their own agenda. Some of them have caused more damage than good. We don't need another hero.

I quite agree. ETA: Maybe the whole thing started in April 2016 with the "Undies on the outside" fundraiser where Ron dressed up as Captain Underpants? https://forums.phoenixrising.me/threads/new-omf-fundraiser-with-a-funny-picture.44237/

ME-International Board of Directors: James Lutey, David Steckel, Mary Kelley, Colleen Steckel Board Members: Pam Lutey, Jennifer Caldwell, Janet Flynt, Bazia Zebrowski 501(c)(3) nonprofit - United States Global Advocates for MEICC (GAME) "Our effort in this group is to recognize that ME is...

And the "ME Vereniging Nederland" is who exactly? According to Wikisage: So he's quoting himself as an authority. And when Wikisage says "the national patient organization for ME in the Netherlands", is it really? So what is M.E. Centraal? https://mecentraal.wordpress.com/ And who is...

For those who don't want to wade through it:

Your new source, the 2019 international English Language version https://icd.who.int/browse10/2019/en#/G93.3 is different to the source you referred to in post 148: So let's look at both those sources and I'll explain why they are irrelevant and of no practical use to me. The international...

Incorrect. https://www.icd-code.de/icd/code/G93.3.html That's going to be hard. My diagnosis is signed by Dr Scheibenbogen at the University Hospital in Berlin (Charite). I found them to be excellent, and there's nowhere else to go to in Germany except expensive private doctors offering the...