Search results

When picturing @Peter Trewhitt at the traffic lights, I am reminded of the Ladybird Book of Mindfulness that has Alison spending her day being at one with nature*. I imagine Peter in his car tranquilly enjoying the colours as they changed from red to green to amber to red... [*Alison has been...

Sorry for my cross-posted flippancy. You are right of course. Unblinded trials with subjective outcomes are standard, and only good for generating positive results for the treatment in question. Digging deeper into the methodologies of the trials with objective outcomes typically finds all...

Just in case any of you were like me - mostly worried about what appeared to be an extraordinarily poor trial name acronym, I found this in the text Lessening the Impact of Fatigue in Inflammatory Rheumatic Disease Trial (LIFT) study

To the contrary, it pops up in plenty of papers and presentations. Problems with mood often feature in lists of symptoms, but when we've looked closer, the ways of collecting the data suggest that the label is misleading. People worried about paying their bills when they can't work for example...

Anyway, back to the results of the study: Note this is just for the G1 group, who got Covid during their pregnancy. Have a look at the definitions of fatigue. Only a handful of the 259 women were reporting fatigue that resulted them doing half or less than half as much as before the onset...

It's good that someone thought to do this study - I assume there will be a followup. Fatigue Or indeed child care in those early months. I don't know many mothers who aren't exhausted up to the three month mark, and even the 6 month mark, especially if they also have a paid job. A lot of...

Same. :)

Has there been any response from the authors to the odd-appearing charts?

Welcome to the forum @marcjr, thanks for sharing your experience. Feel free to not answer my questions which are rather personal. Did you take urolithin for the purpose of improving ME/CFS symptoms? If so, was it and the exercise programme recommended to you by a health professional? I was...

I haven't read the study yet, but I'm not so sure that it was well designed. When I did two CPETS, 48 hours apart for a trial, I appeared fairly fit on the first day and definitely not fit on the second. I think fitness was probably defined as it is here - peak oxygen consumption per kilogram...

On that, we have a thread with Cochrane's latest publicity around evidence-based medicine. World EBHC Day : October 20 2022 It's all about partnerships. :) Which reminds me, there is an enormous "Independent Advisory Group" supposed to be keeping this review on track and ensuring good...

There's a lot there that is very ironic when looked at from the position of a person with ME/CFS. e.g. Partnerships from the first document: That last sentence pretty much sums up the Cochrane Review of exercise as a treatment for ME/CFS - they'd like the appearance of collaboration with...

On the singing idea that Dr David Strain was in favour of: Was the study he is talking about the ENO Breathe study? discussed here: An online breathing and wellbeing programme (ENO Breathe) for people with persistent symptoms following COVID-19:.., 2022, Phillip et al Because it did not show...

Just catching up with this thread. I'm really concerned about what David Strain was saying about the singing treatment. And concerned that he and @PhysiosforME are giving some credibility to this tragus clip commercial product. We've discussed this treatment here: Vagus Nerve Stimulation...

@cassava7 did not leap to post the emails here from the beginning. As far as I can see, it was only when it was clear that polite feedback was being described as bullying that the emails were posted. The issue that was being discussed is not a new one. Doctors for ME have been given feedback...

The emails were not personal correspondence. They were between an office holder of DwME and a person with ME/CFS politely expressing concern about DwME communications. I think @cassava7 has remained very civil and respectful, despite some pretty astonishing replies. I think it is useful to...

Such a good idea. I did my monitoring with a BP cuff, and writing it down. But for sure, there's so much better technology now. I think we'd learn a lot by having 50 people with ME/CFS and 50 controls being monitored for a month, recording this cardio stuff, symptoms and activity as well...

It does seem odd. There are differences in approaches, such as the length of time of measurement - my data for instance is taken just after 3 minutes of standing, no leaning. Comparing data from different measurements might be accounting for some issues? I think they used a longer stand time.

On pulse pressure: From Healthline: My understanding is that less than 30 is a problem, and less than 25 is getting to be quite a big problem (hence the colours used on my data above). That's a different measure, and looks like one that might lose a bit of information in the calculation...

A warm welcome to the forum @tropicalmum. I hope you will stick around to understand why members here had a different response to the documentary to you. The place in the clip you linked involves yoga - 'have you tried yoga?' is something of a catch phrase around here.