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I don't think the results tell us very much about whether enterovirus infection is not associated with fibromyalgia either. All it really tells us is that simply having an infection is not in itself enough to cause fibromyalgia. Lots have people have had polio virus, not everyone becomes...

A reminder on this - please get in touch if you are interested in helping to report on the presentations.

There's good stuff: Recognition of similarity to ME/CFS, even if it's not made explicit, and mention of PEM: Recognition of the need for training - although there's inconsistent talk of Long Covid as a diagnosable entity while at the same time using it to mean anything from post-ICU issues...

That's a dispiriting article all round. There's Julia Newton who has contributed as much to the confusion between chronic fatigue and ME/CFS as anyone talking about new horizons: Perhaps if she had done her 2011 study properly and not suggested ME/CFS could be fixed with more physical...

I'm really tempted to create a tag called "patronising tosh" and use it to categorise this study.

Again Parker uses that effect of the images bouncing bigger and smaller while his soporific voice suggests that everything will be alright if we just pay him lots of money. He must imagine that it is some sort of hypnosis.

Do you have any links to where this is documented Peter?* So perhaps my second point above needs to have a wider scope and consider what safety nets are in place for people with ME/CFS and whether they are treated equitably compared to people with other equally disabling conditions. And...

If the prospective studies we have (Dubbo, Jason's mononucleosis study) are any guide, odds are in favour of recovery at the 4 month mark when NICE's diagnostic criteria allows diagnosis, and at 6 months when some other criteria allow diagnosis. I think it is right to generally be positive...

We have an existing thread on the Hospital Passport idea in Advocacy here - Members Only M.E. hospital and health passport, plus members experiences of hospital stays and visits.

* Specific action to counter stigma and increase support Most societies are reverting to something approaching normal life while the current pandemic continues. This is a tacit acceptance of deaths, severe acute illness, vaccine-related side effects and the post-infection conditions as...

*Assumptions of psychosomaticisation Some people contend that post-infection syndromes are simply hysteria, where normal sensations such as fatigue following an illness are amplified by fear, secondary gains and deconditioning from a lack of activity during the illness until there is a down-ward...

* Arrangements for convalescence We don't yet know what increases the risk of developing a post-infection syndrome and what increases the chance of making a full recovery. However, a period of convalescence seems likely to give people the best chance of recovery, given the biological evidence...

*Transparency about post-infection syndromes When there is evidence that post-infection syndromes are occurring, governments and employers have a duty of care to their citizens and employees to provide adequate warning about this. This is still not happening in a concerted way. I recall going...

*Insurance treatment of post-infection syndromes I'm writing this in the context of New Zealand Accident Compensation scheme, where people who suffer an accident don't have to sue in order to get support. There is a government managed insurance scheme so that everyone suffering an accident...

I want to put together a list of ethical considerations related to post-infection syndromes arising from an epidemic illness and would appreciate your help. Here's one to start with, and I'll just jot things down as I think of them. Please add your ideas. * Who is put in harms way or...

I'm no expert in how things work in the US either, but I'm pretty sure that if there was a will, there would be a way. The NIH seems to routinely issue specific funding opportunity announcements https://grants.nih.gov/funding/searchguide/index.html#/ e.g. Mass Spectrometric Assays for the...

From that 2019 paper I mentioned above re NMR: NMR does seem to be much better for identification of novel compounds. It sounds, though, that you need a lot more of a metabolite (10 to 100 x what MS will work with) for NMR to find it. For anyone just learning, this 2019 paper seems good...

Yes, we've talked about this problem with mass spectroscopy elsewhere on the forum. Here's something from a 2010 paper. I'm sure that there has been progress since then, but there are still problems: Edit to add - here's a 2019 paper that is a relatively up to date survey of mass...

There's a transcript there. It covers lots of key points - symptoms, no cure, doctors not trained, lots of people undiagnosed. Winstone came across well - young, very athletic, enjoying life, hit with ME/CFS after mononucleosis. Still working but that's pretty much all he can do, and he has...

Australia: NSW Agency for Clinical Innovation: Exercise and long COVID Unhelpful conclusions from elsewhere are collated; conclusion is 'more research is needed'.