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  1. Noir

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    I got one in the regular folder, but the verification email could end up in the spam folder. If it's not even there I don't know what's up.
  2. Noir

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    Can confirm that the mysterious word "by" means city. :thumbup:
  3. Noir

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    The Danish Health Authorities rejects the new NICE guidelines and keep clinging to CBT and GET. Please sign and share this petition to help put pressure on the Danish Health Authorities so they will start following current biomedical science. I've linked both an English translation and the...
  4. Noir

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Speaking about that article in the New Yorker, here's a twitter thread on the author's (big surprise) conflicts of interest. "It isn’t ethical for writer Dhruv Khullar to source Vinay Prasad here They’re both funded by VC firm Arnold Ventures Both work to research and reduce patient services...
  5. Noir

    Gamers for M.E. - Play video games and support OMF

    @EzzieD I agree on Fallout New Vegas and ESO. Fallout New Vegas has some great characters, dialogue...and, ehrm...radio hosts. Too bad Obsidian never got to make another Fallout, but haven't tested The Outer Worlds yet. ESO is pretty good too, great to be able to explore as much of Tamriel as...
  6. Noir

    Gamers for M.E. - Play video games and support OMF

    The Gamers for M.E. project now also has a Twitter account, for those interested in following it: https://twitter.com/GamersforME It's still early days, so don't expect too much action just yet, but at least now it's easier to find.
  7. Noir

    Gamers for M.E. - Play video games and support OMF

    Thanks, yes I'm hopeful the project will grow with time! BGS-games are my favourites too btw, Fallout 3 on x-box was my first open world game back in the day. Really like their freedom of exploration, atmosphere and music, especially in the Elder Scrolls like Oblivion and Skyrim. And modding is...
  8. Noir

    Gamers for M.E. - Play video games and support OMF

    That would be cool, SNT Gatchaman! I surely understand the heart rate issues, though, I've experienced that while playing Valheim. Haven't really dared to play Dark Souls since I got ill, but Bethesda games like Skyrim and Fallout seems to work better, luckily...after all, leveling up has always...
  9. Noir

    Gamers for M.E. - Play video games and support OMF

    I made a new Discord-server for the Gamers for M.E. project. If anyone wants to join, here's an invite link: https://discord.gg/dAu3bnaRay I'll add the Humble bundle-tip on the server, but for now it'll mainly help spread the word to our 5 bot members... The more ways to support OMF and biomed...
  10. Noir

    Gamers for M.E. - Play video games and support OMF

    If your're a gamer and want to support Open Medicine Foundation, I've set up a charity donation campaign team at streamlabscharity.com called Gamers for M.E. 100% of the donations goes to Open Medicine Foundation. You'll find the campaign here...
  11. Noir

    Linking up with the Long covid community

    I agree it might be better for organisations to get in touch with the different long covid communities. Check out Long Covid Alliance, that's just such a collaborative project. Yet I also think it's quite frustrating to see how little attention people in long covid communities and support...
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