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  1. Sean

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Correct. The double standard is appalling. Patients have a vested interest. Those who have committed their careers, reputations, status, empires, incomes, etc, to the psychosomatic interpretation have a conflict of interest. The one thing the BPS school cannot be described as at this point is...
  2. Sean

    No moderating impact of a medically unexplained etiology on the relationship between psychological profile and chronic pain, 2018, McNaughton et al

    'Medically unexplained' is a reasonable and neutral term, at face value. Problem is how it has been hijacked and perverted to mean 'medically unexplainable', that is by primary biological mechanisms.
  3. Sean

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    How to hijack the whole notion of biomedical and pervert it to whatever ends suits one's desires. All they are going to do is look for superficial, highly selective subjective correlates, and make sure none of it properly tests for causation, and claim that proves the psychosomatic...
  4. Sean

    Long Covid in the media and social media 2023

    committee members noted “concern” as patients reported being unable to receive a correct diagnosis or proper treatment. They are not getting 'proper treatment' because there isn't any yet.
  5. Sean

    Associations between daily routines and social support among women with chronic fatigue syndrome 2023 Rosenburg et al

    Large tracts of medicine seem to have abandoned the whole idea of causation, or at least robustly testing for it, and instead rely on association only. Typically weak spurious ambiguous association.
  6. Sean

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    Besides the differential in numbers and severity, and of course any generic gender-specific issues, all the descriptions of ME from females that I have read describe the same experience I have had. I don't see any other fundamental differences in the condition along gender lines. [Edited.]
  7. Sean

    ME researcher Jonas Bergquist - interviews, talks

    Yep, it is beyond ridiculous that some of the more plausible, obvious, and easily tested possibilities are either not tested properly, or just ignored completely.
  8. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    I happen to agree with the view that we should not conflate ME with the current definition of LC. That definition is too broad and non-specific, and we have seen some recent examples of how that will be misused against ME, and any connection with LC. What we should argue is that there is highly...
  9. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Follow-up article. https://www.abc.net.au/news/2023-04-25/long-covid-report-sparks-push-for-research-into-linked-illnesses/102262582
  10. Sean

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Does it also make any difference whether the Dr is male or female?
  11. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Yes, that is not great. But even there they are leaving wiggle room: Clinical evidence about a possible overlap between ME/CFS and long COVID is not yet clear. So get to researching it properly then.
  12. Sean

    News from Australia

    The devil will be in the details. But on the face of it this looks quite promising. They seem to have understood this is not well understood yet, needs a multi-factor approach, with long-term commitment, the involvement of all relevant parties, and the relevance of ME to it all. Parliamentary...
  13. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    This post has been copied and some of the following posts moved from the News from Australia thread to keep the discussion in one place. The devil will be in the details. But on the face of it this looks quite promising. They seem to have understood this is not well understood yet, needs a...
  14. Sean

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Sure is. I am male, but I get that too when clinical staff realise that 1) I used to work in the hospital system, and in a job that required more than a little knowledge and skill, and which they depended heavily on to be able to do their job, 2) that I actually do know more than a bit of the...
  15. Sean

    News from Scandinavia

    +1 :thumbup:
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