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  1. Sean

    'Disability as identity' - discussion thread

    So they don't feel any moral obligation to help the disabled, is my cynical take on it.
  2. Sean

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    The output of the psychosomatic advocates tells us far more about what is going on in their minds than it does in the minds of their patients.
  3. Sean

    'Disability as identity' - discussion thread

    And ME in particular would be one of the worst possible choices you could make to get attention and (alleged) secondary gains.
  4. Sean

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    +1 :thumbsup: Getting it more openly discussed and debated, and on the record, is a critical step.
  5. Sean

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    @adambeyoncelowe Outstanding. Thank you. One for the history books. :thumbup::hug: That last sentence might be ambiguous to the uninformed reader. Suggested: But when only unblinded subjective outcome measures are used then the results become much less reliable. (I would argue strongly that...
  6. Sean

    United Kingdom: Science Media Centre (including Fiona Fox)

    Thank you for that excellent thread. :hug:
  7. Sean

    Yoga is effective in treating symptoms of Gulf War illness: A randomized clinical trial Hayley,Younger et al 2021

    A clear and concise description of the 'benefits' of most psycho-behavioural therapies.
  8. Sean

    Long Covid in the media and social media 2022

    Didn't see any mention of ME/CFS in there.
  9. Sean

    News from Scandinavia

    Shouldn't take long.
  10. Sean

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I am encouraged by the amount of overt push back by both patients and clinicians/researchers that seems to be happening against FND. The Goldilocks theory of therapeutic failure. Finding the 'right balance', which can only be done with the careful guiding therapeutic hand of a experienced and...
  11. Sean

    A new science of emotion: implications for functional neurological disorder, 2022, Jungilligens, Perez et al

    I look forward to having ME without actually having ME. :whistle: And always has been. They have never let go of this idea, even though more than a century later they have failed to get it on a solid footing that allows accurate diagnosis and safe effective treatments. It still revolves around...
  12. Sean

    Long Covid in the media and social media 2022

    I agree that there is a real opportunity here for medical science to learn from differences between those who fully recover from Covid and those who don't. Whether they are up to learning those lessons in a good way is a different story, and sadly one with less hope if recent history is...
  13. Sean

    Facts and Myths about Chronic Fatigue Syndrome, 2022, Per Fink et al. (Danish Medical Journal article)

    I don't think that we are 'entitled' to. But do think that trying to enforce the requirement of justified belief too vigorously has very serious technical problems and socio-political dangers.
  14. Sean

    BABCP 50th Annual Conference: Imperial College London 20-23 July 2022

    Acceptance and commitment therapy for Muscle Disease: a randomised controlled trial Trudie Chalder, King's College London, UK Yeah, sure it is.
  15. Sean

    Facts and Myths about Chronic Fatigue Syndrome, 2022, Per Fink et al. (Danish Medical Journal article)

    PACE did use objective (or relatively objective) outcome measures, like the step test, 6 minute walk test, and employment and welfare use. Problem is they did not use them as primary outcome measures, the results were negative, and they have done everything they can to bury those results...
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