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Best I can tell volition/drive is not impaired or pathological in ME. What is impaired or pathological is the consequences of engaging it, of putting it into action. The urge to be active and involved in life is not diminished, but the capacity to do so is, often to the point of being...

Getting a bit tired of these kind of critiques focusing on the pharmaceutical industry. Whatever their dodgy practices might be, at least their claimed treatments have the advantage of actually being amenable to proper blinding/placebo control. e.g. Rituximab. Needs to be a lot more focus on...

Right question.

Yep. Gross and fine patterns.

Researchers need to stop making claims, and stick to reporting methods and results.

Do you mean: We have talked on the forum about ways that the CPET finding might be actively or unconsciously manipulated.

Both subjective self-report. Stopped there.

If this is to be a thread of record then it is probably worth taking screenshots or making PDFs of critical stuff and posting it here for posterity, in case it is removed/altered at the quoted source.

Yep. The ongoing uncritical protection and support by the UK medical establishment, in the face of overwhelming evidence, is very disturbing and depressing. They are failing patients in every direction on this stuff. Apparently the revised NICE guidelines, and similar changes elsewhere, simply...

Excuse me if I suspect the PACE authors are trying to avoid releasing the data set until they hit the 20 year (?) requirement for holding the data. Then they can destroy it. Problem solved. For them.

mumble mumble :grumpy: :speechless:

https://www.abc.net.au/news/2022-04-01/long-covid-as-cases-of-increase/100955928 Generally good, though with one or two debatable points. (ABC is the Australian national public broadcaster.)

Turning ME into mere 'fatigue' was a massive propaganda coup for the psychs et al, for which we have paid a terrible price, and continue doing so.

Abstract Functional Movement Disorders (FMD) can be identified by limb weakness, gait disorders, or involuntary movements which are inconsistent with a neurological diagnosis. A extremely dodgy basis for a diagnosis. But true to form. :grumpy:

Ah, yes. Seen it. Excellent presentation. So many threads and videos to keep up with. :rolleyes:

Multi-system can mean two different things, in my view. It can mean either something is wrong with each of the multiple systems themselves. Or it can mean that otherwise healthy multiple systems are having a pathological demand or restriction imposed on them, forcing them to operate outside...

An Irish snow leopard is a rare beast.