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So, they screened people in a fatigue clinic for adrenal gland functioning (using the ACTH test). They don't say how many people they screened, but they do say that they only found 8 people with faulty adrenal gland functioning. Comparing the size of the adrenal glands of these 8 subjects with...

Small adrenal glands in chronic fatigue syndrome: a preliminary computer tomography study Scott LV, Teh J, Reznek R, Martin A, Sohaib A, Dinan TG. https://pubmed.ncbi.nlm.nih.gov/10451910/ Abstract No inclusive or satisfactory biomedical explanation for chronic fatigue syndrome (CFS) has as...

Welcome to the forum @RenWmn I thought that line from the Discord Guidelines was interesting. So people with ME/CFS and Long Covid are theoretically protected from hate speech.

It's damn annoying, because prospective studies are rare and expensive, and Jason's one had a good chance to tell us something useful, including about possible predictors of severe ME/CFS. This very odd definition of severe ME/CFS just muddies the water. It's not the first time I've been...

Members could create threads in the 'Resources for Health Professionals' subforum dedicated to resources in languages other than English e.g. 'Useful resources about ME/CFS and associated conditions in Swedish'. Even if the target audience of the resource is patients, it's still helpful for...

Thanks @Kalliope, that's an interesting article. I'm very glad we have Nath working on ME/CFS.

Link to an NIH article abut Avindra Nath - commenting about post-viral symptoms, saying these need to be studied and given credence Is Long Covid a type of ME/CFS? Discussion thread (quote added)

Several posts have been moved to create a new thread UK: Specialist Rehabilitation Medicine Services for ME/CFS and Long Covid

Yes, that's bizarre. Especially coming from someone who has spent a lot of time working on ME/CFS, and specifically on diagnostic criteria.

An opportunity for people with Long Covid to be involved - although they are only aiming to recruit 40 people (10 in each country). That seems a bit light given the extensive range of patient characteristics they hope to sample. Good involvement of patient organisations It's good that...

It looks as though the expectation is that rehabilitation will help - which is arguable, although probably true for some in the heterogenous bucket that is Long Covid. But, at least they seem to recognise that you need a good measure of disability, among other things, in order to assess whether...

Darren Brown is involved, he's been a good advocate for Long Covid and has acknowledged the contribution people with ME/CFS can make to understanding Long Covid. He has/had Long Covid himself. I haven't read the paper yet, but I'd be surprised if the intent of this new Episodic Disability...

I note the change in the title of the paper: June 2021: Brain imaging before and after COVID-19 in UK Biobank March 2022: SARS-CoV-2 is associated with changes in brain structure in UK Biobank I've added the new abstract (which also materially differs) to the first post.

They just show example time-course responses of the calcium flux (for healthy controls and ME/CFS patients, with and without naltrexone). e.g. they have picked a time-course response for one cell (or a group of cells) from the 200 to 300 cells they analysed in each group. I don't like it...

My understanding is that naltrexone, taken at the full dose (e.g. 200mg per day) (for opiate addiction) completely blocks endogenous (endorphins released by the brain) and exogenous (recreational drugs such as heroin) opiate receptors. It stops people taking drugs because they don't get the...

My reaction to the abstract was similar - it looked like a diagnostic mess. But the paper suggests that they did make an effort to objectively diagnose endometriosis. e.g.

Goals that are not legitimate 37.00 Include: offering formulas for illusory happiness persuading the client to adopt the therapist's world view, values or life strategies the therapist as the "one who knows" - the analyst is not in possession of special insights or knowledge concerning the...

Mollon really seems to be having an internal struggle. He seems to love Freud and the idea of psychoanalysis but is acknowledging, with the help of some great quotes, that psychoanalysis has considerable risks and problems. Despite my initial impression (edit - he has a couple of technical...

That's great news. The Washington Post article is worth a read. As I understand it, the three senator are just at the stage of introducing a bill - so there is some work to do to get it turned into legislation, although it sounds as though there may be wider support. (?)

I have seen more people say that the SGB therapy did not help them than people saying that it did - even just on Phoenix Rising. I've seen one social media post saying that it was a disaster for them, that they are more ill than before and that the treatment has made them highly sensitive to...