Search results

I don't think it's as clear cut as that. That study appears to have done CPET studies on a number of male patients over a period of time. The CPETs were part of a diagnostic process, which classed people as having ME/CFS or not. I think it's highly likely that anyone having a positive CPET...

One research question that is worth considering is trials of drugs prescribed for POTS in ME/CFS cohorts. These drugs are widely prescribed for people with ME/CFS, but we don't know if they work. If they do, then some solid trials would help more people benefit from them. If they don't, then...

Thanks for posting this @Ryan31337. I haven't read the paper itself, but it does look like a nice study, and the editorial is indeed interesting. It would be great to get some trials done in people with ME/CFS with strong orthostatic intolerance symptoms.

The second video is from February of this year. So, if she wondered at any point, that did not stop her carrying on. I guess enough patients got better to make her think that she was helping. But, with the published results from trials, and her own studies, I don't know how she could not...

Thanks so much @cassava7 for the 2012 video. I found a video of Professor Julia Newton speaking about GET this year - link here Professor Julia Newton on GET. My concern about her presence on the writing team grows. There is no evidence that the interventions related to activity that she...

Yes. But surely the patient/carer representatives on the writing team should have this knowledge? If those representatives don't know the significance of ME/CFS definitions, or know that dropouts are a common problem in GET trials to be watched for, or can't explain PEM to the other reviewers...

So, is this potentially the process? Writing team makes a protocol Protocol is peer-reviewed (peer-reviewers potentially including a team from S4ME) Protocol is released to wider public for comment Protocol is finalised Review is prepared (S4ME could run a somewhat parallel process to consider...

We have very little information about Kay and specifically about her knowledge of ME/CFS issues, but the information that we do have suggests to me that she has not spent much time becoming familiar with the politics or the science of ME/CFS. I don't see how she can be effective in guiding the...

Posts about Paul Garner (psychologising about Long Covid) have been moved the Paul Garner thread

The more the process is politicised, the more it deviates from a straight-forward scientific assessment (what evidence is there? is the evidence any good?; what does the good evidence tell us about benefits and harms?), the more it includes people who don't know what they are doing in a review...

That's a great example @Woolie. And then, if you were conducting a review of whether homeopathy helped ME, you would not need to have a clinician who is a big fan of homeopathy on the review panel, nor would you need to have a person with ME who likes homeopathy on there either, to explain to...