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When I first read this a couple of days ago (without knowing who wrote it) my first reaction was that it was heavily influenced by 'Unrest'. The line "My brain itself wasn’t functioning so well either. It felt swollen, as if it were trying to push out my eyeballs" is almost exactly what Jen said...

As pain is currently optional on the NICE guidelines I was just wondering what sort of percentages experience pain as an ongoing symptom. The pain should be only attributable (as far as is possible to know) to ME, ie not another existing medical condition. Where it might get tricky is if you...

http://www.babcpconference.com/information/information_2017.htm http://www.babcpconference.com/programme/keynotes_2017.htm " Kate Rimes, King's College London Chronic fatigue syndrome: Emotional processing and stress vulnerability Chronic fatigue syndrome (CFS, also known as ‘ME’) is...

I have been reading the 2004 Management of chronic fatigue syndrome / myalgic encephalopathy in children and young people on the RCPTH website which it notes " RCPCH notes: The guideline has been post-dated by the NICE CFS/ME guideline although some sections may still be of relevance. " I'm...

Just wondered if it might be worth starting a thread to list any similar training courses for healthcare professionals; at the recent CFSAC meeting they discussed the need to get incorrect literature removed/changed. They can only deal with stuff in the US. I just found another one but have no...

More Trudie Chalder for ref: Intro to MUPPs: https://www.yumpu.com/en/document/view/35187968/trudie-chalder-intro/7 Treatment of Chronic Fatigue Syndrome the Evidence (from 2014) https://www.yumpu.com/en/document/view/29331021/trudie-chalder

Positive and negative affect mediate the bidirectional relationship between emotional processing and symptom severity and impact in irritable bowel syndrome " Abstract Introduction Individuals with IBS report higher levels of psychological distress compared to healthy controls. Distress has...

"Psychologists Claim ‘Selfitis’ – The Obsessive Need To Post Selfies – Is Now A Mental Disorder This might be coming as a bad news to selfie-takers as psychologists have warned that ‘Selfitis’ – the obsessive need to post selfies on social media – is now a mental disorder; meaning it could have...

Just remembered what this was about; use of Leptin.........which has been researched in RA eg https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4137840/ not sure if @Jonathan Edwards might have info on this that he might want to put on the Montoya Qand A thread?

Just finished watching the last two parts. Overall I was very impressed; the collaboration was incredible. Montoya was able to talk openly about what he would like to be able to do re clinical trials, and the rep from the FDA was very helpful and instructive. Another scientist who is on the...

Reply: David Drew Shadow Minister (Environment, Food and Rural Affairs) To ask the Secretary of State for Health, what recent research his Department has commissioned on the diagnosis and treatment of ME. Jackie Doyle-Price The Parliamentary Under-Secretary of State for Health The...

Have done a marathon watch of this. The agenda is here: https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/2017-12-13/index.html It was very well organised and structured; started off a bit humdrum but they covered a lot of very important topics. Some things of interest; Lucinda...

Layla Moran Liberal Democrat, Oxford West and Abingdon To ask the Secretary of State for Work and Pensions, how many people with myalgic encephalomyelitis were assessed for personal independence payments in each of the last five years; and what proportion of those people were found to be...

Update: " Some of the key developments in our Ampligen program have included regulatory approval in one of South America's largest markets, a stepped-up collaboration to support a regulatory submission for ME/CFS in Canada, positive results from an intranasal safety study, and several new...

RME Sverige Published on Dec 19, 2017 Geraldine (Jo) Cambridge, PhD, Dep. Medicine, University College, London on B-cell depletion with Rituximab.

This website http://www.medbroadcast.com/condition/getcondition/myalgic-encephalomyelitischronic-fatigue-syndrome which claims "MediResource Inc. - MediResource reaches millions of Canadians each year." "MediResource Inc. is the only Canadian health information provider to be accredited by URAC...

and yet they are still being prescribed..........

It was one drug that was being 'looked at' certainly back in the early 2000s ( I remember reading about it). However , in the UK it was hit or miss as to whether you could get it prescribed by your GP. More recently I have come across people that it helped 'stabilise' who have been on it for a...

This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS Supposed treatments for ME CFS - plus overview by Mayo clinic https://www.drugs.com/condition/chronic-fatigue-syndrome-cfs.html Content supplied by Mayo clinic...