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  1. Sly Saint

    Nimodipine - use in ME

    " Brief notes on Nimodipine and ME/CFS Nimodipine belongs to a group of drugs called calcium-channel blockers. In very simple terms these drugs relax the smooth muscle in the walls of blood vessels and cause them to dilate. So they are mainly used to lower blood pressure, treat angina, and...
  2. Sly Saint

    ADHD Drugs for Chronic Fatigue Syndrome - How Well Do They Work?

    " Could drugs meant for hyperactive children be an effective treatment for chronically fatigued adults? As illogical as it sounds, they might be. Some doctors prescribe ADD/ADHD drugs for their patients with chronic fatigue syndrome (ME/CFS) and say they've seen positive results. We have a...
  3. Sly Saint

    Ampligen for ME/CFS

    "The new management team has achieved several recent milestones including: 1. The first shipment of Ampligen delivered for sale in Europe utilizing the Early Access Program (EAP) 2. EAP in Europe extended to pancreatic cancer patients beginning in the Netherlands 3. FDA approval to increase...
  4. Sly Saint

    Ampligen for ME/CFS

    "PHILADELPHIA, Nov. 15, 2017 (GLOBE NEWSWIRE) -- Hemispherx Biopharma (NYSE American:HEB) announced today its financial results for the third quarter ended September 30, 2017." "We have secured our first country approval for Ampligen® in ME/CFS and we expect several more in the coming years."...
  5. Sly Saint

    Unrest - Screenings 2018

    Galway Premiere of the award winning medical documentary film 'Unrest' (97 mins) about Myalgic Encephalomyelitis (M.E). " The screening of Unrest will be preceded by a brief introduction and followed by a 15-minute Q&A session, where M.E patients will reflect on their experiences of being...
  6. Sly Saint

    MRC invites proposals CFS and Myalgic Encephalomyelitis Aug 2017

    20/08/2017 "The Medical Research Council invites proposals under its cross-board highlight notice in the area of Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. Proposals should address the mechanisms underlying chronic changes related to CFS and ME in one or more of the theme areas...
  7. Sly Saint

    News from the Institute of Neuroimmune Medicine (INIM), NOVA, Nancy Klimas

    " Join the Institute for Neuro-Immune Medicine as we host, Unrest, the Sundance award-winning documentary about ME/CFS, the most common disease you've never seen. Jennifer Brea is about to marry the love of her life when she’s struck down by a fever that leaves her bedridden. When doctors tell...
  8. Sly Saint

    European Parliament questions

    9 November 2017 "Subject: Funding of research on ME/CFS Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affects more than one million people within the EU. This illness is characterised by persistent and excessive fatigue, post-exertional malaise, flu-like symptoms and cognitive...
  9. Sly Saint

    Phase III Rituximab Trial - News

    I still :inlove: Oystein Fluge
  10. Sly Saint

    Trial By Error: My Brief Encounter with Professor Crawley

    ah yes, it's all making more sense now
  11. Sly Saint

    Per Fink - speaker at Swiss Re Ins Summit 15 - 17 Nov 2017

    I think those can be read in quite different ways. I think from his perspective he is trying to show (a bit like Wessely et al) that these patients have been 'long neglected/not taken seriously' but in fact are all suffering from BDS and respond to his treatments. eta: if you watch Unrest, the...
  12. Sly Saint

    Trial By Error: My Brief Encounter with Professor Crawley

    David Tuller represents a lot of ME sufferers, its not only a few 'militants' who came up with the $60,000+ for him to continue his investigations. He is acting on our behalf and therefore according to the law: Action against discrimination You can do something voluntarily to help people with a...
  13. Sly Saint

    Per Fink - speaker at Swiss Re Ins Summit 15 - 17 Nov 2017

    This seems to be the main theory among the BPSers on the continent, particularly in Spain. I think those over here like Chalder are picking up on it so I expect we will be hearing a lot more about it soon........particularly in relation to MUS. groan.
  14. Sly Saint

    How near are we to a diagnostic biomarker? What is it likely to be?

    Still no responses about the 'mysterious molecule' Davis and his team found in the serum of ME patients? On the other place I mentioned Huntingtons Disease only because I came across it when searching on illnesses where there are problems with energy production (as opposed to ones that have...
  15. Sly Saint

    Per Fink - speaker at Swiss Re Ins Summit 15 - 17 Nov 2017

    The crux of it seems to be Central Sensitization, and reclassification of certain conditions as Bodily distress syndrome: " Implications for new classification •Bodily distress syndrome –Severe (multi-organ system type) –Moderate (single-organ system type) •CP type •GI type (incl. IBS) •MS type...
  16. Sly Saint

    Esther Crawley

    Well, I've removed the question mark from the thread title.........It was actually meant as an intro to the piece she wrote........not as an actual question. (We really need a 'rhetorical' emoji):muted: eta: did everyone who commented actually read the article?
  17. Sly Saint

    Esther Crawley

    Ooh, I don't know, could be Crawley speak for 'womanly wiles'.
  18. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Shouldn't that have been 'What is new in MY research" ?
  19. Sly Saint

    Esther Crawley

    I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. http://www.bristol.ac.uk/media-library/sites/university/migrated/documents/nonesuch6.pdf (pages 15/16 on pdf, 29/30 in mag) Her mission: "‘The aim of my fellowship is...
  20. Sly Saint

    Per Fink - speaker at Swiss Re Ins Summit 15 - 17 Nov 2017

    This was David Tullers blog about it: "Swiss Re has released information about its 2017 “insurance medicine summit,” to be held this coming November. Not surprisingly, Professor White is on the schedule. Although he has retired from his academic position, he apparently continues his work...
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