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  1. Sly Saint

    Dr Phil Hammond - Health Revolution tour 2018

    Interesting to read the reviews from his patients/their carers: starts with two rather incongruous statements: " Dr Philip Hammond I trained as a GP and worked as one for 20 years before retraining as an associate specialist in the young people's specialist Chronic Fatigue/ME service at the...
  2. Sly Saint

    Action for ME AGM (UK) is live streaming now

    :thumbsup: But don't most places that have AGMs have voting members; I don't think AfME members have any such rights(?)
  3. Sly Saint

    Dr Phil Hammond - Health Revolution tour 2018

    Including 14th March 2018 Exeter at 'Phoenix' :laugh: http://www.drphilhammond.com/ maybe EC will pick up a few tips for her next series of presentations? :yuck:
  4. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Could a tweeter maybe ask Phil Hammond why, if they believe ME is not psychological, is his boss EC talking at a Mood disorders seminar?
  5. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    From me-pedia http://me-pedia.org/wiki/Esther_Crawley: "SMILE was a pilot trial on children with ME/CFS and involved comparing the effects of standard medical treatment (SMC) against that of the Lightning Process & SMC.[4] The initial budget was £164,000 funded by the Linbury Trust and the...
  6. Sly Saint

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Her talk now has a title: Professor Esther Crawley (University of Bristol) - What is new in paediatric Chronic Fatigue Syndrome (CFS) and Myalgic Encephalopathy (ME) research No doubt it'll be about her groundbreaking SMILE trial(?) people on twitter/FB please watch for any related posts 12:00...
  7. Sly Saint

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    In his book he says he thinks CFS is the most appropriate name.
  8. Sly Saint

    16th Nov Q&A CfS, Dysautonomia, and Mitochondrial dysfunction-Dr. Nicholas L. DePace

    EDIT: this should be in the BPS forum Just came across this on Youtube: Q/A on Chronic fatigue Syndrome, Dysautonomia, and Mitochondrial dysfunction. Facebook live Nov. 16 @ 6pm est. Sesion de preguntas y respuestas sobre sindrome de fatiga cronica, disautonomia, y disfunciones de...
  9. Sly Saint

    Is it time for another enquiry on Peer Review?

    No recent news article on this but thought given all the recent 'new treatments' popping up and dodgy research papers it is worth discussion. I found this interesting article from the Guardian (Sept 2011). Publish-or-perish: Peer review and the corruption of science | David Colquhoun "But it...
  10. Sly Saint

    What it's like to travel again after 14 years of being housebound (Telegraph article)

    "after 14 long years of rehabilitation and therapy"......she doesn't say what. From the first break to the second "It took me another seven years to muster the strength and financial means to go on a second trip". "....as I became stronger," how? "Before leaving home, I had made sure to...
  11. Sly Saint

    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    this concerns me.........another 'miracle cure'?
  12. Sly Saint

    USA: JAX ME/CFS Center and Derya Unutmaz news

    This is a welcome development: "We have also engaged a range of community stakeholders, including ME/CFS patients, physicians, educators, and community activists, including #MEaction advocate Jen Brea, to participate in our Community Impact Steering Committee. Linda Avey, who is the CEO of the...
  13. Sly Saint

    New ruling on Lightning Process from British Advertising Standards Authority

    The problem is will they now think there is scientific evidence following the SMILE trial? Yet another reason why the trial should never have been allowed to happen.
  14. Sly Saint

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    In their 'medical health professionals' opinion. They stipulate on their report how long; from memory it's 6months, 1 year, 18 months. What they don't tell you (and will probably deny if you ask), is that you can be moved back into the support group from the WRAG and payments are resumed at...
  15. Sly Saint

    Journalist seeks people harmed by / coerced into GET, children harmed by GET or parents accused of abuse

    FYI: https://www.researchgate.net/publication/273874213_G160P_Case_series_of_Pervasive_Refusal_Syndrome_presenting_with_Chronic_Fatigue_Syndrome_avoiding_the_pitfall_of_a_wrong_diagnosis also FII (Fabricated or Induced Illness)...
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