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    Blog: Spoonseeker, "The Cult of MUS" [guest post by Couch Turnip]

    The Mickel therapy inventor? I have a friend recently diagnosed with CFS who has just shelled out a fortune for this. ...
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    Managing Chronic Fatigue using Scientific Insights from N-of-1 Studies - 2018 - Dr Suzanne McDonald, Qld Australia

    I've not read the blurb, but even some form of comparative group would seem to be useful - healthy controls or another chronic illness to flag up the nature and degree of any differences? Apologies if this is being done
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    Why has 'persistent enteroviral infection' been dropped as a research strand in ME/CFS? (Jen Brea asking)

    If negative studies are not published, how much time and money is wasted reinventing wheels ? How many aspects pursued that could have been better informed? Negative results and mistakes offer insights . Is it ego that denies their important role?
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    Fatigue in Epstein-Barr virus infected adolescents and healthy controls: A prospective multifactorial association study (2019) Wyller et al.

    Did Klimas or Hanson not do an adolescent EBV study over a longer timeframe with Gordon Broderick doing the " fancypant" maths? It might be interesting to compare immune markers etc. Too late for me to try and get my head around anything tonight.
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    Hannah Rapley thesis incl. staff’s experience & knowledge of fabricated or induced illness within a paediatric chronic fatigue setting

    From my inbox ( also posted on " call for tenders..." thread https://www.openforumevents.co.uk/events/2019/safeguarding-children-promoting-welfare-preventing-harm/?utm_source=OFE+2+SGC+8.4.2019+3+PRIVATE+WC+15.04.19&utm_medium=email&utm_campaign=OFE+2+SGC+8.4.2019 More abuse orientated. I am...
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    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    From my inbox this morning ( I have a varied client group) https://www.openforumevents.co.uk/events/2019/safeguarding-children-promoting-welfare-preventing-harm/?utm_source=OFE+2+SGC+8.4.2019+3+PRIVATE+WC+15.04.19&utm_medium=email&utm_campaign=OFE+2+SGC+8.4.2019
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    A general thread on the PACE trial!

    Click the image within the tweet
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    Trial By Error: Crowdfunding, Week 2; and more Sharpe and Chalder

    There is a lot at stake. The methodology underpinning PACE underpins so much behavioural research that little would hold up to scrutiny. That simply cannot be permitted to happen for career reputations or political implications. We have changes to primary care in England paving the way for...
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    News article - The crippling brain condition doctors say is all in your mind

    Already being done - a few FND with CF being diagnosed in Lothian ( the land of John Stone)
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    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    Sadly you can get chucked out of education at 16 here, and many are.
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    "Answer to IBS is in the mind" - media coverage of new Chalder/Moss-Morris trial

    Here fruit slices ( pastry squares with a kind of current " jam" in the middle) are referred to a fly cemetery s.
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    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    Perhaps a service evaluation by patient group. This would bypass ethical review. Sadly i have a horrible feeling as to those who are " placed" to do this if RCP are in charge.
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    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    perhaps this is what makes charities' and public's stances on things difficult to understand - the fact that this is so little known of is the reason it thrives
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    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    @Tilly , perhaps you cold post a link to the FII guidance so that people can understand a bit better. Are these also perhaps linked to the recent seminar re " safeguarding" involving Bath personnel, police etc?
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    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    My concern is that the paediatric specialists who may well be involved are those responsible for many of the issues experienced.
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    Noise Insulation

    Sound insulation performance is dependent on the frequency of the offending noise and the amount of " dissipation" that can be incorporated. Isolating the direct path ( via channels and fixings) helps significantly some useful info is found on british gypsum site - link below...
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    "Answer to IBS is in the mind" - media coverage of new Chalder/Moss-Morris trial

    This does seem to highlight the recent tactic for muddying the water re efficacy - don' t study the effectiveness of CBT as a standalone intervention. That in itself may be significant.
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