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Before I knew anything of this illness, and the politics engulfing it, I was annoyed that there were no specialists anywhere near us. Now i realise that we are in a better place than many others. ( and the current place is not too good) . I now have knowledge and my daughter understands her...

Thanks- I obviously didn't t read the paper.

I wonder what would have been found 3/ 4/ 7 days after.PEM may start on 2nd day but may be nowhere near its peak.

Autism presents differently in females and support services are only now getting to grips with this- very slowly. (similar to how females present differently with heart attacks etc - the whole gender ratio may be changing as more research becomes gender balanced) The male /female ratio may be...

Thread split from “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019) Who comprise the HANDI group and what are their interests. Interesting re timing of this piece

Ironic that the first item on the "most popular" links on the right hand side of the article page is Why a Gaslighting/Narcissist Relationship Is So Devastating?

Systems and maths and knowledge of ME - few and far between . off top of my head - Gordon Broderick who has worked with Klimas and Craig Robertson who works with Myhill ( his premise on mathematical catastrophe theory as applied to ME is kind of like a bistability switch)

thank you

Yes. When energy is low your body adapts to try and enable you to continue functioning. My daughter's s posture and gait changes when exhausted or in PEM.

Has something like this not been done for GWI? Broderick is known for in depth " fancy math" Otherwise, outwith psychiatric conditions, my guess would be some of the established/ better funded research diseases - cancer/ arthritis/ alzheimers and perhaps epilepsy?

South Ayrshire in Scotland . Forwarded to a mum struggling to get appropriate provision to use at a meeting over the summer in another Scottish Council area.

The everlasting lightbulb springs to mind...

Shared with our council quality improvement officer who is forwarding to heads and SEN heads. It connects well with the Educate ME project in Scotland which tried to provide supportive info for teachers and highlighted the key role that teachers can play. Formal launch later this year but...

indeed. Not a Guinness drinker but OH used to have business trips to Eire and enthused on " the real stuff". Perhaps a qualification to a badly poured pint, but that would be a waste (and a different metaphor)

Anecdotal The chemistry lecturer at uni has commented that he sees glandular fever symptoms reactivate every year at exam time.

I think a true Irish Guinness might just touch on the depth and density of the froth......

Perhaps @PhysiosforME would be interested in this. Not exactly detached, but if looking to understand and reframe support it might be a worthwhile exercise. You have to both know and understand what doesn't t work and why before you can offer anything effective Note the ecent paediatric...

our last hair test had high mercury and aluminium - better ratios of calcium/ potassium etc; my assumption was that improving methylation had released some of these from tissues - perhaps selenium is also playing a part.

Scroll down to the paragraph immediately above " a common theme" near the end. High mercury and uranium due to low selenium https://www.healthrising.org/blog/2019/04/15/nih-chronic-fatigue-lipkin-davis-prusty-oh/