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My stepsister has 2 friends, both of whom were bedbound ( one for over two years), who both claim to be cured by LP. Whether the ME diagnosis was correct is one aspect, but both back to working ( one part time ) . It does seem a bit of a conundrum.

Just as NICE are looking at guidelines. ECs paper and this ... timing is everything.

text - with my bold Ministers said in 2017 that: All documents up to 1995 are available through the National Archive. However, following an exercise conducted by Factor 8 and hundreds of Freedom of Information requests, it was found that this, in fact, was not true. We had attempted to take...

useful for reference for NICE?

Yes, i watched this. Two points that sunk in were Little research had actually been done on the effect and efficacy of these drugs in children and adolescents - the use had been largely justified based on effect in adults ( developing brains are different) Note that this is not uncommon...

New press release that simply reinforces the pervading political culture https://www.factor8scandal.uk/statements-docs/2018/7/3/press-release-department-of-health-apology-for-false-statements?format=amp&__twitter_impression=true

As my daughter had both chickenpox and shingles in primary school, then glandular fever it definately intrigues me.

Yes, that's what piqued my interest a bit more

Given that NICE guideline review has highlighted children and the severely affected the timing of this is good. But will it have the desired effect? For those that tweet effectively, drawing attention to this would be appreciated.

https://phoenixrising.me/archives/5806 I came across this post as it had been " bumped" up. Does anyone know if there has been any further development of this theory?

As FITNET is a follow up of a Dutch study ( taken apart by @Docsimsim & Vink ) , I suspect that where the BPS model is alive and well, that you will find paediatric research.

I don' t know how genuine volunteers are. From the other place there were posts indicating that parents were being " hassled" to join the trial. Phonecalls every 30 mins. With ever present PRS diagnosis should your child slip backwards it' s Hobson's choice. Somehow this Kafkaesque nightmare...

Sadly from a parents' forum tonight i learned of an ill child ( has been assessed by a charity at parents' s request and advised as very ill - i am assuming moderate slipping towards severe) who at the fatigue clinic appointment was pronounced to be getting better and so should be commencing...

Thanks for making this understandable

And if you had to admit there was essentially nothing , you might have to think about seriously funding some research....

Perhaps channel 4 would be better placed ( through their generally less establishment friendly track record) to actually look at facts? They seem to like engaging in derobing emporers. With the joke that is IAPT about to impact thousands of lives with little public knowledge that isn' t spin...

Gua sha is used in chinese and korean skincare and does seem to improve tone, and skin condition - like Perrin it focuses on lymphatic drainage when used facially. Skin issues are one thing chinese and herbal.medicine do get results - perhaps because dermatology referrals are difficult and...

@Action for M.E. this is precisely the kind of approach that renders mild to moderate and moderate to severe in children and requires addressed as a matter of urgency before IAPT undoes the progress being made re GET and CBT Can you respond with how you propose to help with the paradigm shift...

This is people positioning for a share of the IAPT pie .

thread on other place last year https://forums.phoenixrising.me/index.php?threads/pace-10-year-follow-up-feasibility-study.53979/