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John Martin McDonnell Labour, Hayes and Harlington To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase awareness of symptoms of (a) chronic fatigue syndrome and (b) long covid. Hansard source (Citation: HC Deb, 15 December 2020, cW)...

not a recommendation piece in Psychology today When the Body Speaks Let's not neglect the physical symptoms of emotional distress during COVID-19. (note Michael Sharpe is current president of ACLP) https://www.psychologytoday.com/gb/blog/nobodys-normal/202012/when-the-body-speaks

IAPT’s Black Hole – Accountability 14th December 2020 http://www.cbtwatch.com/iapts-black-hole-accountability/

@Hilda Bastian worth a read @PhysiosforME review of new NICE guidelines. https://www.physiosforme.com/post/physios-for-me-view-on-nice-guidelines

as per another thread on the Perrin technique, Perrin is continuing with his courses based on this research. Mar 13 Chronic Fatigue Syndrome/ME & Fibromyalgia-13-14 March 2021 given that this diagnostic criteria bears no relation to the new guidelines (or the old ones), it highlights the...

https://mecentraal.wordpress.com/2020/12/15/helsinki-university-hospitals-outpatient-clinic-for-functional-disorders-treats-me-cfs-patients/

further blog from Valerie Eliot-Smith NICE, the media and the cultural problem of myalgic encephalomyelitis (ME) December 14, 2020 https://valerieeliotsmith.com/2020/12/14/nice-the-media-and-the-cultural-problem-of-myalgic-encephalomyelitis-me/

#rememberSophiaMirza https://voicesfromtheshadowsfilm.co.uk/

'double, double, toil and trouble, fire burn and cauldron bubble'

What Now: POST COVID-19 Syndrome, Long Haulers & Multi-System Inflammatory Syndrome (MIS) https://integrative.ca/blog/what-now-post-covid-19-syndrome-long-haulers-multi-system-inflammatory-syndrome-mis

New ME/CFS SA website launched! Dec 11 https://mecfssa.org.au/

Reminds me of that balloon debate 'game' "In a balloon debate, speakers must argue their case for not being thrown out of a hot-air balloon. "

the REGAIN trial https://warwick.ac.uk/fac/sci/med/research/ctu/trials/regain https://fundingawards.nihr.ac.uk/award/NIHR132046 Award: £1,191,977.49

#MEAction

there are also Questionable Research practices (QRPs) see https://www.s4me.info/threads/questionable-research-practices-among-italian-research-psychologists-2017-agnoli-et-al.17508/

@EducateME Brilliant letter, thank-you. Just one little thing ".. up to a quarter of patients are bedbound or housebound." it's actually far worse than that see https://www.s4me.info/threads/why-are-the-majority-of-pwme-rarely-mentioned.7732/

If that's the case I hope that people like those who signed @dave30th letter to the Lancet re the PACE trial retraction, who are not in the UK, have voiced their support for removal of GET/CBT and for the downgrading of all the 'evidence'. Just to show that it's not just the 'vocal minority' of...

also now on their website https://measussex.org.uk/cfs-me-and-covid19-dr-alastair-miller-december/ eta: if anyones interested Dr Miller is on twitter

"Marco Longhi Conservative, Dudley North To ask the Secretary of State for Health and Social Care, if will he make an assessment of the potential merits of reclassifying (a) myalgic encephalomyelitis and (b) chronic fatigue syndrome as a disability. Hansard source (Citation: HC Deb, 4...