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now the NICE guidelines are out it is pretty obvious that BACME had some kind of preview of the contents.

hmm, well like most of the 'experts' at the SMC they probably haven't read the whole guideline and the evidence it was based on (the PACE contingent just seem to be p***** off that their beloved trial was given the :thumbsdown:)

what are the implications for this and any other GET trial now with new guidelines?

the Guideline itself

General comment on guideline as a whole; good that there is coverage of severe/very severe and children in particular, but as per usual 'moderate' are barely mentioned, and the general impression is that if a patient is not severe/very severe then they are 'mildly' affected.

conveniently omitting the other earlier patient surveys that showed the same.

Fatigue: p50 https://www.nice.org.uk/guidance/GID-NG10091/documents/evidence-review-4

surprise, PW 'expert'. Looks like PEM is being replaced with PESE (post exertional symptom exacerbation) page 49 page 51 https://www.nice.org.uk/guidance/GID-NG10091/documents/evidence-review-4

a response from AfME would be good.

superb piece. @Jonathan Edwards :heart: I don't know what the rules are re copyright but your commentary deserves to be published as it is not only relevant to ME/CFS research.

PW: “It is also remarkable that the committee use the symptom of post-exertional fatigue as a reason for not providing GET" surely they (NICE) used PEM ie post exertional malaise not fatigue? again nervous about the use of 'cause'; echos of the BACME statement. Does this also extend to the...

when one of the many issues with PEM is often aphasia this approach is surely not the best(?) @Carolyn Wilshire

see also https://www.s4me.info/threads/adhd-drugs-for-chronic-fatigue-syndrome-how-well-do-they-work.1204/

CAI Seminar Series: Detection of brain dysfunction in CFS using multimodal brain MRI Detection of brain dysfunction in Chronic Fatigue Syndrome using multimodal brain MRI: Presented by Dr Leighton Barnden, Imaging Consultant, National Centre for Neuroimmunology and Emerging Diseases, Menzies...

hmm Recovery from chronic fatigue syndrome after treatments given in the PACE trial https://pubmed.ncbi.nlm.nih.gov/23363640/

queue...........:emoji_musical_score: 'the sun'll come out tomorrow......'

my GP told me 'in ten years time this will all seem like a bad dream'. That was nearly 20 years ago.

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