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Whilst Esther Crawley's name has a habit of inducing a tic, is this not useful to pwME in some respects? It would be interesting to know if there is a significant level of misdiagnosis of rare diseases, and the study could offer an insight. If cases of Pompe's disease or LGMD2A are being...

Norwich has been trying to establish a centre of excellence for some time, and it does seem as if we need a couple of these to shift the centre of gravity away from institutions where the BPS school has held sway. They'd need multi-year core grants, so they have the staff resources to go after...

63 pages though ... :confused:

Or because your GP has logged you as at risk. I wasn't considered at risk for most of the pandemic, but I got the booster in May for that reason, and have been offered ongoing access to LFTs and antivirals if I test positive. I'm in my 60s. I think I'm on the list because I take an...

Even if somebody was scripting a new Whitehall farce about how not to improve perceptions of contested illnesses, the Solve story would still be rejected as too ridiculous.

I remember re-reading a history essay I'd drafted on the bus when I was 15, and doing the calculation about whether it would look to the teacher as if I'd at least made a cursory effort, but not as if I'd copied it from a book. I suspect this is how some of the authors of papers like this...

This is why I feel any references to "spoons" ought to be retired permanently. Some people who were open minded enough to try and understand what it's like to live with chronic illness now assume that people know how many spoons they start the day with. Why wouldn't they? It's what the spoon...

When I still used social media, I'd capitalise any hashtags I made up for just this reason. It means screen readers used by visually impaired and blind people can make sense of them, but also people with squelchy ME brains!

It's disappointing that they don't say whether this is in addition to the horse tablets and bleach, or instead of.

"Sorry. Had an ME moment. Completely forgot what would happen if the medical profession found out we'd made up yet another name for something half of them don't believe exists in the first place."

That's quite an oops, isn't it.

That's a good question. Is known efficacy of a drug on a symptom enough evidence? Presumably that's how at least some drugs are applied in trials. It doesn't seem unusual for it to remain unclear how some drugs work even decades after they were introduced, so the relationship between drug and...

I did wonder whether that might be the case, but I can't read numbers and statistics very well (dyscalculia). I suppose it's one of those things that has to be noted if you find it, because if it's also found in larger follow-up studies it could be something—but equally it may not be anything...

Test Duration= 125 seconds Number of false starts= 0 Average response time= 516 msec over 25 attempts. Your results show that your alertness may be suboptimal. Consider medical evaluation. It is 4:25am, though. :laugh:

I'm not sure they do, they just report it. It's possible they don't yet have an explanation.

That's going to work marvellously well in a country where the annual statement of earnings and contributions issued to all taxpayers has been known as a P60 since WWII. Might I suggest P45 instead? For him, I mean.

I understand why they want to do this, but even if it attracted support from heavyweight governmental organisations, it would take years to implement internationally. In the meantime we could well discover more about what causes these illnesses, which would probably mean starting the process...

Maybe whoever invented Chronic Fatigue Syndrome trademarked it so that we have to treat it as a proper noun, like Toilet Duck.

Another study finding some differences between patients with shorter/longer disease duration. I don't really understand what sarcolemma fatigue is, but it doesn't read as if these differences are simply the result of adaptation.

Oh, absolutely. I only meant celebrities who don't have any vested interest, such as Martine McCutcheon and Marina Diamandis. Sometimes they may post (or be quoted as saying, not necessarily accurately) things that are slightly frustrating, but they're not actively working against fellow...