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Cognitively I think that might be true for me, but not physically. It seems more as if physical activity prompts the production of something really unhelpful that takes time to manufacture. High levels of it cause PEM symptoms, which will eventually subside if it gets chance to wash out before...

Did you ever query whether your sample had been received? I wondered if someone was checking through previous messages and procedures, and couldn't be sure that some returned kits that were lost en route to the lab had been reissued. Obviously if you never got in touch to ask ... that's not...

But those descriptors might help, or they might send them down rabbit holes, or they might give the bad faith type ammunition. Exactly as the pig-Latin can. The trouble with language is that it's catching. Someone comes up with an image, and before we know it we've woven it into the story and...

Some part of my back brain understands what you're saying, @Jonathan Edwards. The front bit is AWOL today, so I can't respond except to say it's interesting and it hadn't occurred to me before. I think I also understand what you're getting at about the use of language and imagery. It can...

Plus possibly something like: PEM has been triggered experimentally, but the resulting symptoms haven't been thoroughly studied. Our understanding of it always reminds me of the Gripsholm Castle lion.

Yes. And it's not just fatigue, a lot of us feel ill. Sore throat, swollen glands, headache, nausea, hot/cold/hot/cold. Light's brighter, sound's louder, whole body's uncomfortable. I'm sure it varies, but for me fatigue's not even the most troublesome feature. It's the combination of...

It sounds especially gruesome this time round. I hope it's one of the sideswiped-today-but-gone-in-48 hours variants.

Ditto Lady Mar, whose illness appears to have been caused by exposure to sheep dip.

That's really good news if it works out.

I managed to do it too, though the charity took some finding on the list! My mistake—when I copied the charity's number, I included the "EIN:" as well as the digits. As soon as I deleted it, it came up. (I wouldn't recommend searching for it by name, as it's not listed under the short-form...

Thank you, that's interesting. It appears they've done two or three thousand at the most during the last year; it's feasible that some or all of those weren't routine reassessments, but were prompted by changes of circumstances. The 2015 drop in reassessments coincides with a large peak in new...

And what they're able to do, in the face of staffing chaos, is yet another unknown. :rolleyes:

What sort of people don't stumble across these papers and immediately think "Ooh, nice April Fool"? The sort who have the end of the toilet roll nearest the wall, that's who.

Maybe one is that people can have an infection without realising, and another is that many viral infections aren't very memorable? On questionnaires that ask for a Yes/No answer I have to say I had no infection, because it was nearly 50 years ago, onset was insidious, and I've no idea whether...

Yeah, I'm sure you're right. It doesn't, though; "tired" is inappropriate, "exercise" is inappropriate, and that's before we get to the problem of cause and effect not being obvious to anyone who doesn't already know there can be a one- or two-day delay. All the questions probably need to be...

Yep, I'd seen that, but it's not so much the noise as that her muscles and thigh bones look an altogether different colour. It would be interesting to see the results with a different target, and comparisons of other sets of patients. It's a really interesting approach. I hope they will try for...

If they want a brief screening instrument, don't they need to focus mainly on establishing whether PEM is present? Absence (or apparent absence) doesn't rule out ME, but if it is present the patient should undergo a full assessment. I'd like to see the word questionnaire retired for these...

I don't know what those pictures mean, but the musculature comparison does look odd. Be interesting to see the comparisons with a different protein.

I've just remembered about John's Phone, which came out quite some years ago. I don't know whether they were ever sold in the US, or whether you could get a secondhand one: https://en.wikipedia.org/wiki/John%27s_Phone It does have a speed dial function, I think, so it wouldn't be necessary to...

Obviously it won't give him internet access, but a vintage landline phone has no lights at all. I probably haven't enough insight to make any other suggestions—at least, not anything that he won't already have thought of.