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  1. Kitty

    Post-acute COVID-19 complications in UK doctors: results of a cross-sectional survey 2023 Bland et al

    Not quite serious enough to argue for treatment and support, though. Ah, afflicted. A slippery word that somehow seems to get attached to some conditions but not others. Then again, maybe I'm just a cynic.
  2. Kitty

    Keeping Up Appearances - How to look good while feeling ill

    Today's redheads really will be able to have lovely skin, because they'll have had access to effective sunscreen all their lives. The generation of creams that actually work didn't come along till I was in my 30s, so my face was affected by sun damage prior to that. I suppose gingers get some...
  3. Kitty

    Keeping Up Appearances - How to look good while feeling ill

    I have to put sunscreen under the shirts. :laugh: I've had third degree burns from an afternoon on a British beach, and 40 unprotected minutes in spring sunshine is enough to cause painful sunburn. I think our ancestors must have lived underground in the sídhe, because honestly, ginger is...
  4. Kitty

    Science: The New England Journal of Medicine kicks off a historical series looking at its troubled past

    It's just standard usage in the US, I think. It seems a long time since I read a formal publication that didn't use it. To a US audience it might look odd or disrespectful if Black weren't capitalised, which would be a distraction from whatever they're trying to say.
  5. Kitty

    Post-exertional malaise in daily life and experimental exercise models in patients with [ME/CFS], 2023, Vøllestad and Mengshoel

    I wouldn't suggest a minimum, it'd be too difficult to gauge. They'd need to aim for the upper half of the amber zone whilst trying to stay out of the danger area. The protocols used in many studies are likely to put some patients into the red zone even if it wasn't intended; they're doing a...
  6. Kitty

    Post-exertional malaise in daily life and experimental exercise models in patients with [ME/CFS], 2023, Vøllestad and Mengshoel

    A slightly idle thought, but it's a shame some researchers can seemingly accept patients' reports of how they feel, but not their advice on what would be likely put them into an uncomfortable (but not extremely high-risk) level of PEM on a given day. If we could do that, we wouldn't need...
  7. Kitty

    Keeping Up Appearances - How to look good while feeling ill

    I never bother with face lotions or moisturisers, but as a non-tanning redhead, I have to use Factor 50 sunscreen from March to October. For a desert island, most ginger people would pack sunscreen before food! I use the stuff made for babies and toddlers, because when it's applied generously...
  8. Kitty

    hypermobility assessment tomorrow and craniocervical instability question

    I hope the appointment goes well, Lisa. I reckon you deserve the massive cake whatever happens!
  9. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    More news from Benefits & Work on the surveillance plans being put to Parliament: https://www.benefitsandwork.co.uk/news/almost-9-million-claimant-bank-accounts-to-be-put-under-continuous-surveillance
  10. Kitty

    ME on NHS apps

    Good approach. Obviously it's categorically not the developer's fault, but 'blame the computer' is always useful in situations where hackles might be raised by a head-on challenge.
  11. Kitty

    Post-exertional malaise in daily life and experimental exercise models in patients with [ME/CFS], 2023, Vøllestad and Mengshoel

    Absolutely. Moderately ill people often can't predict accurately whether the PEM triggered by a familiar activity will fall into the minimal, pain-in-the-neck, or cancel-everything category. I don't even think this level of variability is understood by many researchers.
  12. Kitty

    ME on NHS apps

    I haven't used an app that asks questions, but well done for doing that! No doubt there'll be a local one here at some point, and there's a good chance I'll have to do the same. Yet another battle for us to fight. :banghead:
  13. Kitty

    Air Fryer worth it at all for someone with severe ME?

    I've no experience of that sort of tariff—only thing I can suggest is download your half-hour smart meter readings from the My Energy page to see what's being metered. It only shows usage, not charges, but at least you'd know what the consumption is?
  14. Kitty

    Air Fryer worth it at all for someone with severe ME?

    Is the 8 Kw an accumulated total of some sort? I'm not sure I've even got enough appliances in my house to spike up to 8 Kw at once. My consumption is less than half that over 24 hours, even in the depths of winter. If it's current consumption and you're not running several electric heaters ...
  15. Kitty

    Air Fryer worth it at all for someone with severe ME?

    Only because, when I first got a washer with a delay function (early 1990s?), the fact that it made no sense drove me nuts. I'd decided to test it whilst I was at home, but couldn't work out why when I asked it to delay the start by two hours, it delayed it by more than three. Nor could I work...
  16. Kitty

    Air Fryer worth it at all for someone with severe ME?

    They usually do, specially washing machines and dishwashers. With all the ones I've had, you set your programme and then press a timer button instead of Go. This advances the length of delay an hour at a time until it gets to the number of hours you want. Then you press Go. The only confusing...
  17. Kitty

    Open UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton, Ryback, Hillier

    The only difficult bit of the whole experience was down to my bloody sat nav! It insisted on trying to approach from Howard Street, which is pedestrian only, and was just taking me on laps of the city centre. I decided to switch it off and combine my non-existent sense of direction with half...
  18. Kitty

    Air Fryer worth it at all for someone with severe ME?

    No, you're right, I have signed up for it. The plans follow the rates the supplier pays to buy the electricity, which change every half hour depending on demand. Between 4 pm and 7 pm they're higher than the standard rate, but the rest of the time they're usually lower. Consumers who can choose...
  19. Kitty

    Evidence of cochlear neural degeneration in normal-hearing subjects with tinnitus, 2023, Maison et al

    One of my medications causes it too. I had to reduce the dose by two thirds because it was driving me nuts.
  20. Kitty

    Open UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton, Ryback, Hillier

    I gave my samples today. It was very straightforward, and I was only in the building for about 15 minutes. I could have stayed and rested if I'd wanted to, but as I was visiting a relative afterwards I left as soon as they'd taken the bloods. Good luck to the team with the study, it's great...
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