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  1. Kitty

    What are the best coronavirus masks?

    If you're looking for a decent supplier, medisave.co.uk is one of them. I've bought all my masks from them during the pandemic, as it's not unreasonable to assume that a high percentage of what's on sale on sites like Amazon are fake. It's worthwhile checking that the masks in questions are...
  2. Kitty

    Inadvertant intravenous injections

    That could be the intention behind the entire experiment.
  3. Kitty

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Not quite that bad! I was hoisted out of a swimming pool a few hours ago, and I'd say it's much less than the weight you feel when your weak legs are suddenly re-exposed to gravity. :laugh: If you've ever been a pool swimmer, you'll know the difference between training in shallow water of...
  4. Kitty

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Fatigue is abnormal, so I'm not really sure how to answer – fatigue is usually only associated with illness, and unlike tiredness, doesn't resolve with sleep. The only types of fatigue I've experienced are the sort you get with ME or with a virus or other acute illness; and the sort you get...
  5. Kitty

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Definitely! I'm once again wrangling with the problem of explaining to a GP that I can clearly differentiate between ME and non-ME fatigue, as one fluctuates hour to hour, and the other is less severe but much more constant. The are other differences, too, but I haven't found a way to put them...
  6. Kitty

    Closed An international survey of experiences and attitudes towards Pacing using a heart rate monitor for people with ME/CFS

    I had the same difficulty, although for a slightly different reason. For me, overexerting by a lot or a little causes the same duration of PEM, it's the severity that changes. Seeing a friend almost always causes a bit of PEM, but it's low-level – grumbling sore throat, sleep not great, a bit...
  7. Kitty

    Anyone has a stair lift at home ? (Moving, part II)

    When I had my stair lift, I found the issue of getting dirty washing down fairly straightforward – I just hurled it from the top of the stairs. Even sheets and duvet covers, which, although they never quite went down to the bottom because my staircase had a steep turn in it, nevertheless just...
  8. Kitty

    Compression Garments

    I don't have POTS, I just get blood pooling in my legs if I have to stand for more than a few seconds, which causes horrible nausea and lightheadedness. I wear grade 1 compression stockings if I have to do something unusual such as a long journey, but I always wear compression shorts to help...
  9. Kitty

    Chills and feeling cold

    If anyone needs warm clothes to go out in a wheelchair, or gets really, really cold indoors, I can't recommend Buffalo clothing enough. It's expensive, but really warm, light as a feather, dries in no time after washing, and lasts for years. Oh, and it's made in my old home town, which is a...
  10. Kitty

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Definitely all right! I really struggle with lots of images and competing colours, especially when I'm trying to get important information from the text rather than just scrolling through the way you do on a social media feed. It looks very clean and simple – great work. I know how much work...
  11. Kitty

    Chills and feeling cold

    Thank you for that, I'll try and remember it next time I get my bizarrely-cold-lower legs thing. I had heard of hypoglycaemia causing the sensation of cold before, but I've got a goldfish memory. I know my blood sugar control is a bit erratic, though, so it's plausible. Somehow knowing the...
  12. Kitty

    Chills and feeling cold

    I think I've aways had "not very well" chills going right back into childhood. They usually meant accumulated tiredness (e.g., at the end of a silly busy week), going down with a bug, or premenstrual syndrome. I get them with PEM too, of course, which I assume is the same phenomenon. But there...
  13. Kitty

    Anybody had any improvement of pain symptoms from HRT?

    I wasn't allowed to take HRT because of a family history of breast cancer after using hormonal contraceptives, but going through a pretty hideous natural menopause made no difference to my ME pain levels. It was roughly the same before, during, and after. My menstrual cycle didn't make a...
  14. Kitty

    BMJ Opinion: To speed progress in treating chronic conditions, engage patients and caregivers as research partners, 2021, Lubell

    I also wonder about the simple approach of routinely asking patients to come to an annual review prepared with a list of the five things that are most challenging about living with their illness, and five things they've found helpful in managing it. This gets away from the groupthink and...
  15. Kitty

    Frequent IgG subclass and mannose binding lectin deficiency in patients with CFS, 2015, Guenther, Scheibenbogen et al

    Inexperienced ME patients also often mistake PEM for infections, and may believe they're unusually susceptible when they're not. My friends and I grumbled for years about getting every bug going, but most of the "viruses" were the nasty immune flare caused by overdoing things, being in the...
  16. Kitty

    Long COVID and Chronic Fatigue Syndrome: A survey of elderly female survivors in Egypt, 2021, Aly et al

    Sadness is associated with any downturn in health, surely? (Though perhaps you're asking why something so blindingly obvious would be noted in a study!) Falls due to ME aren't limited to people who're elderly or visually impaired. If a moderately-affected person's leg muscles suddenly become...
  17. Kitty

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    :rofl: :rofl: That made me spit out my orange juice!
  18. Kitty

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    Do you have any way of creating JPG or PNG images, that might only contain text? I don't know whether this would get around the algorithm or not, but it being in a photo format that is uploaded in the same way as a photo might work. Here's a (completely rubbish) example of the sort of thing I...
  19. Kitty

    PRESSS: A New Patient-Centered Name for an Old Problem, 2021, Ventres

    Never understood what was wrong with "wandering womb" meself. It precisely reflects of their level of understanding, and serves as a useful signal to any woman hearing it to set off the fire alarm and escape amid the confusion.
  20. Kitty

    Misrepresentation of ME/CFS in Media Images: A Picture Tells a 1,000 Words. What Story Are We Telling?, 2021, McMillan et al [and 2022 update]

    There aren't only photos, though. There are all kinds of assets at stock repositories, including cartoons. They're not necessarily expensive – typically, you buy a number of credits, which will allow you to use individually-priced assets (simple images are often 1 credit each). The last bundle...
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