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  1. Kitty

    Supportive armchair?

    I used a £20 Wilko version of that in the house for several years! :laugh: (This was before I inherited my current chair.)
  2. Kitty

    Supportive armchair?

    We had these chairs in the meeting area of our office, and that was true for me too. My chair has bare teak arms, but both the original owner (my granddad, who was 6" shorter than me) and I found that you can position yourself so that the arms are at a perfect height, and this, along with the...
  3. Kitty

    'Lab' testing - could dogs smell ME/CFS?

    I guess to test these things, you need to use clothing from the person rather than have them present, so that you can be sure it's not another kind of cue. Not that anyone would ever fund such a study anyway, but it's still an interesting thought!
  4. Kitty

    'Lab' testing - could dogs smell ME/CFS?

    This is a bit of an aside, but I wonder if dogs can detect whether or not someone is in PEM due to a tiny difference in their smell? They're such amazing animals that it wouldn't surprise me. And if they could, it's a potential biomarker. Probably a nonsensical idea, but...
  5. Kitty

    Supportive armchair?

    I certainly found it worthwhile to get my wonderful 1970s Gimson & Slater rock 'n rest chair reupholstered, as I've never found anything as comfortable. A relative with a bad back also swears by his modern Ekornes Stressless chair too, though. It's slightly wider than mine, but is not a huge...
  6. Kitty

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    I also wonder whether some of this work is treading similar paths to those already followed in ME, and will ultimately produce similarly disappointing results. I hope not, of course, but when you get new researchers entering a field, it's inevitable that there'll be some reinventing of the wheel.
  7. Kitty

    Article series in Guardian, June 2021: The pain that can't be seen. (chronic pain, Long Covid, ME/CFS)

    It seems to be part of a series on chronic pain called The Pain that Can't be Seen, which I think started this week.
  8. Kitty

    UK: Physios for ME

    Most daily living activities are actually a whole series of steps when you break them down, and that's the problem. I usually know from experience when I can start but not complete an activity such as showering without making PEM worse; I also know that if I start, I probably will complete it...
  9. Kitty

    Lipomas, Dercums, Adiposa Dolorosa

    Had my F2F appointment today. I do appear to have lipoedema, but possibly not Dercum's, which is interesting. Some of my lipomas join up to form rafts, and this apparently may just be a feature of lipoedema. There are a couple of areas I get lipomas that aren't typical of lipoedema, but it...
  10. Kitty

    Hearing things?

    Radio 4 has been promoting some recordings by CBeebies to help get children to sleep, which are called Calming Sounds. I tried listening to the sound of waves one night when I felt a bit overstimulated, and found it quite nice. Which sounds are pleasant vs unpleasant is a really individual...
  11. Kitty

    Investigating the relationship between physical activity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Franklin, 2021

    We're normal human beings? Well, fancy that. ETA: Sorry, feeling sleep deprived and grumpy today!
  12. Kitty

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    I've been wondering what the new approach will be, given that the draft guideline only makes recommendations against treatments. That's sound enough, as we don't have any evidenced treatments, but it leaves patients in a zero-option limbo that's particularly difficult for the newly-diagnosed...
  13. Kitty

    Explanation for excessive generalized edema?

    As a non-medic, the only thing I can think of is that ME appears to affect our bodies' ability to process sodium and simple sugars. Some of us suffer low blood pressure and fluid levels, and have to increase our salt intake to compensate; many report that consuming sugar seems to make their...
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