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  1. Arnie Pye

    Low oxygen SPO2 anyone?

    I'm adding something to my post above... I mentioned that my husband is asthmatic. I forgot to say that his asthma is well controlled most of the time and it is quite rare for him to have episodes of being wheezy. After I had used my Pulse Ox meter I asked OH to use it for a minute or two. What...
  2. Arnie Pye

    Low oxygen SPO2 anyone?

    Mine varies from about 93 - 97 these days, averaging about 95. I get very occasional levels of 92 or 98. But I've found it difficult to monitor because it changes so often. In years gone by it would regularly be 98 - 99 when tested by a doctor or in hospital. I only bought my Pulse Ox thing...
  3. Arnie Pye

    Hypothesis: Mechanisms That Prevent Recovery in Prolonged ICU Patients Also Underlie ME/CFS: 2021, Stanculescu, Larsson and Bergquist

    I've been told, following an MRI, that my pituitary is squashed and the stalk that attaches it to the rest of me is stretched, although the words "empty sella" haven't been said to me. I think it is unlikely that a pituitary which has been flattened in one plane and stretched in another could be...
  4. Arnie Pye

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I get the occasional very short-lived cold (a day or a day and a half and then it's gone). During those times I feel better and can think better. The same effect has been noted on thyroid forums where many of the members have one or more autoimmune diseases.
  5. Arnie Pye

    Trisha Greenhalgh on ME/CFS and Long Covid

    My emphasis... She appears to have changed her mind on "not blocking critics". She's now blocked thousands of people on Twitter, including many who have never heard of her and many who have never interacted with her or referred to her in any way. So, her Twitter account will be an absolutely...
  6. Arnie Pye

    'Covid tongue' and oral manifestations of inflammation / immune dysfunction

    The above quote is from the link in post #1. I'm rather stunned that the NHS only list "three key symptoms of Covid-19" when so many sufferers have many more than that. I had a rather cynical thought... Is the NHS only acknowledging three symptoms to help them protect their BPS propaganda that...
  7. Arnie Pye

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    In some disciplines there are very few of them around. A recent (last year) jaw-dropping example I got from an ENT consultant I saw in my local NHS hospital - I was seeing him about chronic Eustachian Tube Dysfunction that has been going on, intermittently but frequently, for well over a...
  8. Arnie Pye

    Management of functional gastrointestinal disorders, Fikree and Byrne, 2021

    In my experience with doctors and bowel problems, they appear to think of the bowel (and the digestive system generally) as a simple tube and usually think that problems only occur with the inside of the tube. The idea that there could be issues on the outside of the tube rarely seems to cross...
  9. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I think Jerome's main website is this one : https://healthinsightuk.org/ I've read quite a lot of his output and I like it. By the way, it's Burne with an 'e' on the end. :)
  10. Arnie Pye

    Management of functional gastrointestinal disorders, Fikree and Byrne, 2021

    It might have been good at full dose, but I never got to try that option. It was a doctor in a Family Planning Clinic that told me that my GP had only prescribed half the normal dose, but my prescription had not been renewed so I couldn't try it at full dose.
  11. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    In Post #3442 by Mango having read this sentence "Emma suffers from long-term covid: Feels like her head is going to explode" I wondered if anyone with Long Covid has had the pressure in their heads and spines measured with a Lumbar Puncture? Perhaps sufferers are developing intracranial...
  12. Arnie Pye

    ‘I can assure you, there is nothing wrong with your kidney’, Keith, 2021

    I don't think that can be relied on by anyone in the medical profession. I wonder if the fact that the sufferer in the following link and in the link in post #1 were both female has anything to do with it. Lisa Steen: The wilderness of the medically unexplained I think it probably depends on...
  13. Arnie Pye

    Management of functional gastrointestinal disorders, Fikree and Byrne, 2021

    I've been diagnosed with IBS over and over again by various doctors and under various circumstances. As well as the IBS diagnosis, I was also told, a long time ago, that my problems were functional - this was before I knew what it meant, although I remember being deeply suspicious because the...
  14. Arnie Pye

    Nickel allergy?

    I have never been tested for nickel allergy or metal allergy or any other allergy or intolerance, but I think I have this problem. In my case I had my ears pierced as a teenager. I was okay for the first ten years, but then things changed and every time I put earrings in, my ear lobes would go...
  15. Arnie Pye

    Lightning Process study in Norway - Given Ethics Approval February 2022

    From the quote in post #510 above... Are the people writing this stuff completely brain dead? Nobody thinks that cancer and fractures should be left untreated. But it is considered perfectly acceptable to not treat any disease that the insurance companies and the government don't want to deal...
  16. Arnie Pye

    "Sitting up straight does not prevent or treat back pain, study finds"

    My husband has suffered from back pain for over forty years. He refuses to take painkillers, however he does do exercises he's been taught by physiotherapists over the years and also uses an exercise bike at a setting which makes it difficult to turn the pedals. He also walks several miles about...
  17. Arnie Pye

    Patient Involvement in Medical Education Research: Results From an International Survey of Medical Education Researchers, Moreau et al, 2021

    I have a couple of comments on this... 1) I would love to know how much input pharmaceutical companies have into MER. 2) I don't know exactly when it started, but medicine seems to have given up on curing a vast number of diseases and illnesses. Instead doctors only try to mitigate symptoms...
  18. Arnie Pye

    Ian Harris: "Surgery, the Ultimate Placebo"

    I care very much about the quality of healthcare, because I find it so hard to get any. Suppose a patient has been given various derogatory labels that have been on their records for decades. If the patient has always found it hard to get taken seriously with any health problem they could go in...
  19. Arnie Pye

    Ian Harris: "Surgery, the Ultimate Placebo"

    I've never understood why tonsillectomies are now derided as a waste of time and money, and totally useless. It was one of the few surgeries I've had that was, in my opinion, an absolutely amazing success with no obvious drawbacks since it was done. I used to lose a week off school about 3 or 4...
  20. Arnie Pye

    Making the biopsychosocial model more scientific—its general and specific models, Smith, 2021

    From post #16 So if a patient visits the doctor they get pre-judged as being mentally ill before they've even said hello? That sounds about right to me actually - anyone who sees a doctor probably is mentally ill these days for being so deluded as to believe a doctor would help them. Why...
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