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    Low dose Naltrexone - How might it work biologically in ME/CFS?

    I was thinking along same lines of looking up Narcan and seeing what it actually does: undoes the effects of opioids not necessarily eg getting rid of the opiods. But the focus seems to be e.g. breathing, it doesn’t work on overdose with eg alcohol or other drugs. And isn't long-lasting ie 30-90...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I was initially thinking that ensuring the timescale that/length of wait Cochrane take to find an independent process to deal with complaints is made transparent is useful at this stage just in case. How organisations are capable of dealing with these things appropriately and their ability to...
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    Brain fog, cognitive dysfunction

    Agreed on this one. Here's a simple 'experiment': when already not a 'good day' (but not bad as I'd got out of the house) I had to be taken to an appointment in the car. There were lots of road works meaning uneven surfaces lots of swinging round and stopping because of one side of road closed...
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    Talking therapies linked with reduced risk of cardiovascular disease

    I wish, these things seem to get pushed in through the GP pathways with claims of 'the never never' being reduced. Based on the fact that people who were less ill and had a working situation where they were more able to attend regular sessions of anything - it could have been balloon animals...
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    Long Covid is being erased —again—Ed Yong

    Yep. I've used that one (mirror) as well as it being like x-ray glasses for seeing who people are when they know you have ME/CFS. And I have come to start realising that the word I've been searching for is 'callous' ironically in the last week too when trying to put my finger on what the...
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    Long Covid is being erased —again—Ed Yong

    This is familiar. And speaks to how for e.g. ME/CFS unbelievably the disability itself is absolutely huge, but somehow society has managed to find a way to create an even bigger disability it has loaded onto these people. SO big that those with this incredible disability feel better-off damaging...
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    Long Covid is being erased —again—Ed Yong

    Yes please to calling them out. And having names for them and terms for what they are doing. This is an important line that we should be able to use about each and every person using faux ideologies and one-liners across the various aspects of LC and ME: whether it is weaponising mental health...
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    skin rashes, itchy skin

    Agreed, and indeed a dermatologist has pointed me to this too
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    skin rashes, itchy skin

    Sadly that is not at all how it works for those in the UK who are under bad GPs. I can completely understand the caution. I had something that eventually resulted in a 'dermatological emergency' and a letter back to GP noting between the lines how wrong they had got me (changed noting in their...
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