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well put

I wonder if someone is bankrolling this study for expected future supplement profits, it would explain why its bring done and done so badly

Its not likely but it could be a type of secondary Parkinsons.

But according to some estimates 25% of us have the undiscovered genetic defect that causes depression hence we must take the drugs in vogue which change over time to subdue this defect. How can so many people have the same undetectable defect that can't be studied? I'll refrain from saying more...

Thats crazy, if only 12% get funded then to double the funding would require 833% more researchers. That is ludicrous, what are the unselected ones supposed to do, leave medicine and retrain for another field perhaps? If every other field of research has this kind of dismal response rate then we...

I believe Janet posted it on the other place when it happened, though i don't think it was a photocopy, it was typed text.

Can't easily attend with the timing but i hope it goes well. I would suggest Dr Davis get funding, world class scientist told Stanford is not a real institution (i forget exact wording) is beyond belief. That said in general updating best practices, weeding out pseudoscience and scams (PACE for...

I tried whey protein and it provides a shot of energy and reduces PEM duration and severity. Pricey but effective. When i say shot i don't mean normal person functioning but better then average for me

I would copy and paste this into a brochure for ME/CFS patients. I was not very interested in pursuing it if it was positive (long story) but it would have provided a useful piece of information about the disease mechanism, if it was all one disease. I suspect you are completely correct, its a...

Its got so many layers of snake oil they can't even keep them straight.

The acetyl carnitine will likely help, its the only reason i can still read online posts and think coherently, the B vitamins are a crock (i know some will disagree) the Q10 will help though i find its effect wears off over time, the ALA i don't know. I don't like testing so many things at once...

Indeed, they learn from the best (or should i say worst) :emoji_face_palm:

Right, can you provide references? It hasn't been named yet?

I can tell you that raising PGD2 has no effect on my non 24. And its not hard or expensive to do, its an effect of the niacin flush. Can you tell us what this other sleep center is? mine either, as i said i don't think mine is genetic, but a ME/CFS treatment will be the ultimate test Based on...

The non 24 in blind people is due to lack of rhythm setting from melanopsin in the eyes. These people typically respond to melatonin supplementation and a subset still respond to bright full spectrum or blue light since its actions are a separate system from vision. That said the neurologist i...

yes, this i hope i don't get this bad, though i would like to know what the mechanism is, neurologist insists its genetic because all non 24 is genetic. He knows nothing of ME/CFS so i'm not sure how much stock to put in this belief.

+1 i hope they pursue this, their patients that responded leading them in this direction obviously improved, your improving, something is responsible for that. I love it. However they would spin it to look even worse because they have already decided it can only be psychosomatic

They are not, i just like to be very professional when going after institutions that will use every dirty trick against you. I aim to provide no ammunition, it makes her actions look extra bad when they can't even dig up any mud to try to sling. I know its boring, its just how i think, i try to...

I know what you meant but i wouldn't, making fun of a liar with lawyers is not a smart strategy