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    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    Dignitas will he a huge beneficiary.
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    Consultation involvement

    Yes this was what I was alluding to . There were suggestions on the other threads re how participation could be made easier for all , and why telephone etc is an issue too. It simply seems that cognitive issues are not recognized enough , the varying types of disabilities not explored enough...
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    UK - NHS England online tool and clinics for long Covid.

    Sadly many accounts of reduced function and incapacity are from those who did not go to hospital- indeed some did not have severe COVID symptoms. Another well thought out study ( hint if sarcasm)
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    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    Link ?
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    Sensations of fizzing or buzzing, or paraesthesia in limbs

    Here its " full of buzzing bees" but seems to be more joint related.
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    Coronavirus - worldwide spread and control

    I share your concern. My cousin lives in Melbourne with his family. His parents live in Cape Town , South Africa- a country that was initially doing well but seems also to have significant issues now. Not good for either .
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    Consultation involvement

    From previous threads ( particularly the paediatric NICE guidelines consultation and problems with conversation), there was interesting discussion about the ability of #pwme to participate in consultation. The existing go-to seems to be online survey, with telephone being a back up and this was...
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    Pacing - what do you do/how would you describe it?

    This. It took us a long time to recognise this. Adrenaline is a real bummer, perhaps especially if you are a child . Children naturally want to do things- holding them back is difficult, especially when a lot if the " advice" promotes increasing activity. It is false energy and I think the...
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    Digital Behavior Change Interventions for Younger Children With Chronic Health Conditions: Systematic Review, 2020, Crawley, Loades et al

    If your studies are broadly crap, your meta analysis will be broadly crap. Or did I miss something?
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    Coronavirus - worldwide spread and control

    Behavioural fatigue .... wonder who coined that one?
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    BPS attempts at psychologizing Long Covid

    Interesting tweet given current concerns
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    Comforting factors that influence the severity of fatigue and other somatic symptoms from the perspective of CFS, 2020, Overgaauw

    a variety of shopping bags in different sizes, colours and materials may give it a run for its money ...
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    The Science Bit: Post-Covid syndrome, Myalgic Encephalomyelitis, and the recurring pseudoscience of mass hysteria, July 2020, by Brian Hughes

    Not at all @Trish , it was a bit too ambiguous and needed clarification
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    The Science Bit: Post-Covid syndrome, Myalgic Encephalomyelitis, and the recurring pseudoscience of mass hysteria, July 2020, by Brian Hughes

    The history encapsulated by @Brian Hughes piece is illuminating and may not be known to long haulers. It may be worth tweeting a link on one of the threads highlighted ? ETA being framed by a psychologist gives it more resonance.
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    The Science Bit: Post-Covid syndrome, Myalgic Encephalomyelitis, and the recurring pseudoscience of mass hysteria, July 2020, by Brian Hughes

    With tweeting link on prominent post Covid thread. History is illuminating
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    Psychologically Informed Physical Therapy for Children and Adolescents With [FND]: The Wellness Approach, 2020, Gray et al

    They can't make enough strong coffee to cope with this ....
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    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    God I need a stronger coffee now
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    Covid-19 - Psychological research and treatment

    Wasn't SW ' s input in " quarantine fatigue", from situations which in no way represented a pandemic, part of the no need for lockdown narrative ? Is such advice being sought , or simply being given ?
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    Coronavirus - worldwide spread and control

    https://www.bmj.com/content/370/bmj.m2752.full?ijkey=90DKkLzBD1ca2TU&keytype=ref&s=09
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Eyseneck personality inventory in PhD says it all really ..... there is data in the appendices for those who can get their heads around it.
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