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    Machine Learning-assisted Research on ME/CFS

    If melatonin is being prioritised as an antioxidant would yhis knock on to body clock dysregulation and sleep isdues?
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    Machine Learning-assisted Research on ME/CFS

    Great news @mariovitali
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Is this normal practice. If not, then it raises more questions re BMJ.
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    Updates from the UK ME/CFS Biobank / CureME team

    Brilliant - thank you @mariovitali
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    #MEAction Scotland News

    Please have more " faults" !
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    Bile Acids and the Gut Microbiome, 2015, Ridlon et al

    Tagging @mariovitali
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    Beware creating a moral panic about antivaxxers Fiona Fox The Times 2019

    or those who cannot medically deal with certain types of vaccination - live vs non live etc due to underlying conditions
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    W What constitutes a full neurological examination. Our diagnosis ( default CFS) was by paediatrician - i can' anythingt recall remotely neurological in her examination Eta read post explaining. Don' t think as full an exam.as suggested was done. Deteriorated since then anyway.
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    For many getting any kind of referral from a GP is difficult. That alone may skew things. If it is not something that has an association then who will look for it?
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Has mRNA been tested?
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    The Timeline of Post Exertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Nielsen, Hodges

    I do wonder, though perhaps ethically difficult, if actimetry and some form of video would work . Video would capture any modification of " normal" For example my daughter' s posture changes during/ after PEM. Her muscles and tendons tighten which increases pain so her positioning/ stance...
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    Trial By Error: A Plea to Fiona Godlee on a Familiar Topic

    Thank you @Jonathan Edwards
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    This
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    I suspect that the supportive variety of CBT can be a helpful tool. The issue is that people are not aware that there is a different type, so will have more trouble understanding why someone would refuse it. If the " special type" of CBT was explained, particularly as public awareness seems to...
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    The troubled history of psychiatry

    Yep. We are medicalising life.
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    RCPCH conference 2019 abstract: When chronic fatigue syndrome leads to mutism, Moeda et al

    Given the impact of this research can anyone bring it to the attention of biomedical/ exercise specialists for comment. Perhaps thus weeks conference is an opportunity. This is really dangerous . Too many children have not recovered from similar rehabilitation.
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Yes. Our chiro trips are the one thing that gives some temporary relief. Chiro is amazingly gentle, but not local.
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Same for my daughter. very tight neck. Tendons/ attachments can look / feel like bone at times.
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    Charity funding

    given the cost of insulin in US you can appreciate why it's not in their interests
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    Skin crawling/formication

    Has anyone found anything useful re the formication? This is currently a huge issue for my daughter - it is worse when sleep is poor and the catch 22 is she can't sleep if this is manifest, even if she does actually feel sleepy ( as opposed to exhausted). Looking back though diet and...
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