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Don Staines (Griffith University) will be presenting again in London at Invest In ME, June 1 2018.

The most common misdiagnosis is... you guessed it... psychiatric disorder. https://www.mailman.columbia.edu/public-health-now/news/mitochondrial-disease-patients-face-difficult-road-diagnosis

I wasn't aware New York had a sit-lie law. My recollection is it's mostly limited to a few cities on the west coast US and Hawaii. In San Francisco, the sit-lie ordinance is rarely (if ever) enforced. I believe the police are required to first inform the person of the ordinance, then ask the...

In the United States, so called "Sit-lie laws" have been challenged on the basis they discriminate against the homeless, but I've never heard of them challenged on the basis of discriminating against disabled. On the contrary, proponents of Sit-lie laws often point to the need to keep sidewalks...

The media has recently gone back to saying Carey Price had "chronic fatigue syndrome". At first read, I thought perhaps a concussion contributed to the "chronic fatigue (syndrome)", but it appears the concussion happened after the CF(S). Price is apparently having a horrible season. Some guys...

31-year-old world class cyclist and triathalon athlete retires to become a teacher due to Chronic Fatigue Syndrome. Reading this story, I can't help but wonder if the "concussion" from a 2013 car crash might have played a role. That's when her CFS started. Or is that too obvious? --- Cycling...

It's been about a month since applying, and I've received nothing but the automated reply. I question if they are, in fact, still actively recruiting. I don't plan to follow up on this, as I'm already in Dr. Davis' studies at Stanford (thanks to @JaimeS ).

Had my blood drawn at Stanford this past week. I think it was 12 tubes! But the orange juice and Amazon gift card made it all worth it. :) The blood was for multiple studies, including a T-cell study (which I assume is the study @Kalliope mentioned above). They also want more info on family...

I have mild tinnitus (self-diagnosed... my hearing tests are fine). Overall, I don't think about it much, and actually find the sound helps with sleep. Low volume music usually masks the tinnitus, and is probably one of the reasons (besides housebound boredom) I listen to so much music. The...

No one is asking why Elmer Fudd is in a picture with Kate?

MS patient goes to Mexico for stem cell transplant (she wasn't eligible for the UK trial). Not as a cure, but as a way to "freeze" the progression of the disease for up to 5 years. http://www.bbc.co.uk/news/resources/idt-sh/caroline_wyatt_multiple_sclerosis

From the BBC article, quoting neurologist Dr. Jon Stone: This seems to be the fallback position. Keep recommending GET/CBT, because it's better than nothing.

Just wanted to say that rejection of PACE is not a guarantee of complete rejection of GET/CBT for ME/CFS. Healthwise, which provides medical content for millions of Americans, has rejected PACE. However, Healthwise still points to Cochrane, unnamed clinical experts, and the assertion that...

Begum calls ME "my biggest challenge".

I have written letters regarding GET for ME/CFS to the CDC, Kaiser Permanente, Healthwise, California Department of Public Health, California Medical Association Medical Board of California, and California Department of Managed Healthcare. The California Department of Managed Healthcare has...

Shut down hospitals. Train more therapists. The only logical solution. :unsure:

Some perhaps. But as one of Kaiser Permanente's 13 million members, I can assure you that they still recommend GET and CBT for ME/CFS. Edit: I've come to understand that, in the United States, GET and CBT for ME/CFS are considered a "scope of practice" issue. Scope of practice issues are...

That was quick! Maybe someone read this thread? :nailbiting:

Apologies for my lack of clarity. The quote from the article is "Muscle and joint pain characterize the disease." My muddled comment was that the CDC/SEID/IOM criteria do not have pain as a mandatory symptom. Probably should have used a period and not a comma.