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Good to see him supporting all these things. :thumbup:

https://www.bbc.co.uk/news/live/uk-scotland-scotland-politics-44355292 There are four items on the summary of what will be discussed, and the first is: The petition committee takes evidence from a young ME sufferer calling for a review of treatment I think there might be another thread on...

The question for me, though, in this thread, is: What do we have scientific evidence for, from properly designed research?

Thanks, Arnie - it basically says that if you're a shift worker and miss the opportunity for a big spike in growth hormone in your sleep, you catch up on it in the day (if I've understood that correctly).

I think there'll be a lot of individual variation (especially among PWME) but I'd like to focus in this thread on what scientific evidence (if any) there is for the claim, on a statistical scale. Is there anything in the scientific literature?

That's my question, really - is there any actual evidence for this or is it just one of those ideas that gets repeated uncritically so often that people end up believing it when they really shouldn't?

I've heard it said by various people (naturopaths, primarily, and I think also Dr Myhill) that it's best to go to bed early (9:30pm, say) because an hour's sleep before midnight is worth two after it, because human growth hormone is produced during the hours of sleep before midnight. This seems...

Thanks, Andy - I've edited that into my OP.

Parliament Live goes on for hours, BTW! I don't know when we'd be likely to see Carol in action.

Only just seen this: Edit: Here's a link to it online (it was earlier this afternoon), which starts just as the discussion begins: https://parliamentlive.tv/event/index/50fb53f3-c6ea-4848-8e5d-c00d6a52f005?in=14:30:20 Thanks to @Andy for that link.

I think this is very important. We forget that other people don't know what it involves.

It's my experience with the NHS that nobody knows what specialist stuff exists, even in the same town or city. You'd think they'd have some sort of directory, but apparently, they don't.

Congratulations, @JaimeS! :thumbup::thumbup::thumbup:

I can't travel, Arnie, and my experience is that a lot of private practitioners are willing to deal with patients entirely by phone. It's worth checking.

But patients would have to attend the research hospital in Bethesda, presumably? Any patient sick enough to be interested would be unlikely to survive the trip.

If that's the reason for the hold-up, we need to look at ways of working with them to re-promote the study and to pull in more punters.

I've become predictable! :nailbiting:

Want to add that to the calendar, @Andy? Sounds interesting. :)

Thanks for your work in organising this, @Andy. :thumbup: