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King's researcher receives NIHR funding to study Long COVID "For more information, please contact Patrick O'Brien (Senior Media Office)" https://www.kcl.ac.uk/news/kings-researcher-receives-nihr-funding-to-study-long-covid who are 'other stakeholders'?

Paisley scientists lead groundbreaking research into long covid " Paisley academics are to lead groundbreaking research into the impact long covid has on people’s energy levels. Researchers from the University of the West of Scotland are conducting one of 15 studies into the disease, which aims...

the irony is that 'Adaptive Pacing Therapy' was the PACE authors version of 'pacing' which in the end they said was not as effective as CBT or GET so CBT/GET then became the 'standard' CFS treatment. So to say it (APT) is 'commonly used to treat CFS' is a bit misleading to put it mildly.

Scotland: UWS project merged thread full article https://www.renfrewshire24.co.uk/2021/07/19/uws-project-part-of-20-million-funding-to-examine-long-covid/

Survey – Do GPs in Wales use NICE guidance? https://wames.org.uk/cms-english/survey-do-gps-in-wales-use-nice-guidance/

moved post well worth a watch; this Dr Campbell has a lot of followers and seems to talk a lot of sense. Judging by the comments though( a lot of people mentioning ivermectin) they haven't seen this (tweet retweeting this posted on ROB 2 thread)

https://www.s4me.info/threads/paul-garner-on-long-covid-and-me-cfs-bmj-articles-and-other-media.15629/page-64#post-338423 eta: it appears PG is recruiting a research associate for that project. https://www.cochrane.org/news/job-vacancy-research-associate-evidence-synthesis-liverpool-uk eta 2...

https://www.miragenews.com/new-clinical-trial-aims-to-improve-diagnosis-597717/

full details https://www.cc.nih.gov/sites/nihinternet/files/internet-files/recruit/pdfs/20_fatigue.pdf (this pdf seems to have been created last year?)

how indeed.

" Doctors with M.E. Honorary Fellow, Professor Derek Pheby, has responded to Dr. Nina Muirhead’s article for the Royal College of Physicians, following up her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for...

The effect of IL-2 stimulation and treatment of TRPM3 on channel co-localisation with PIP2 and NK cell function in myalgic encephalomyelitis/chronic fatigue syndrome patients Natalie Eaton-Fitch, Hélène Cabanas, Stanley du Preez, Donald Staines & Sonya Marshall-Gradisnik Abstract...

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease with unknown etiology, no validated specific and sensitive biomarker, and no standard approved effective treatment. ME/CFS has a profound impact on the quality of life of both patients and caregivers and entails high costs...

Invest in ME Research has won a £1,000 Movement for Good award thanks to nominations from the public. https://www.investinme.org/IIMER-Newslet-21701eccles.shtml Invest in ME Research has again secured places in the Royal Parks Half Marathon which will take place in October 2021. This will be...

"In this series, I dig a little deeper into the meaning of psychology-related terms… but not this week. Instead, we’ll take a look at ME/CFS, and why it’s absolutely not all in someone’s head." https://mentalhealthathome.org/2021/07/09/what-is-me-cfs/

seems to have started as a facebook group (75 members) https://www.facebook.com/groups/128056252168684/

except in many ways they aren't. What really irks is that it is obvious that they must have looked at ME/CFS research and literature , most of which (that is of any biomedical use) has been funded by ME patients, and yet there is absolutely no acknowledement or recognition.

So that makes even less sense! Why not just call it 'Living with ME/CFS' in all three languages......talk about 'complex' :laugh: HHSH

Having watched the documentary in this thread https://www.s4me.info/threads/new-documentary-living-with-chronic-fatigue-syndrome.21412/#post-356821 earlier in the day and then the BBC Panorama one last night, I was struck by how similar the two are. It is unbelievable that they are still pushing...

Not saying the title should have been just 'living with ME' instead; maybe something more ambiguous to 'appeal' to all and more likely to be watched by those outside the community. It would be good if someone could link this video on twitter re any discussion of the Panorama Long Covid...