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  1. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    What Now: POST COVID-19 Syndrome, Long Haulers & Multi-System Inflammatory Syndrome (MIS) https://integrative.ca/blog/what-now-post-covid-19-syndrome-long-haulers-multi-system-inflammatory-syndrome-mis
  2. Sly Saint

    News from Australia

    New ME/CFS SA website launched! Dec 11 https://mecfssa.org.au/
  3. Sly Saint

    Paediatric chronic fatigue syndrome: 25 year perspective, 2020, Loades, Crawley, Chalder et al

    Reminds me of that balloon debate 'game' "In a balloon debate, speakers must argue their case for not being thrown out of a hot-air balloon. "
  4. Sly Saint

    U.K. trial Rehabilitation exercise and psychological support after Covid 19 infection (REGAIN) Warwick University

    the REGAIN trial https://warwick.ac.uk/fac/sci/med/research/ctu/trials/regain https://fundingawards.nihr.ac.uk/award/NIHR132046 Award: £1,191,977.49
  5. Sly Saint

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    #MEAction
  6. Sly Saint

    Measurement Schmeasurement: Questionable Measurement Practices and How to Avoid Them

    there are also Questionable Research practices (QRPs) see https://www.s4me.info/threads/questionable-research-practices-among-italian-research-psychologists-2017-agnoli-et-al.17508/
  7. Sly Saint

    BMJ Rapid Response: Dr Nina Muirhead

    @EducateME Brilliant letter, thank-you. Just one little thing ".. up to a quarter of patients are bedbound or housebound." it's actually far worse than that see https://www.s4me.info/threads/why-are-the-majority-of-pwme-rarely-mentioned.7732/
  8. Sly Saint

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    If that's the case I hope that people like those who signed @dave30th letter to the Lancet re the PACE trial retraction, who are not in the UK, have voiced their support for removal of GET/CBT and for the downgrading of all the 'evidence'. Just to show that it's not just the 'vocal minority' of...
  9. Sly Saint

    Dr Alastair Miller's misleading claims about effectiveness of the English NHS (rehab) ME/CFS clinics, Royal Society of Medicine webinar in Sept '20

    also now on their website https://measussex.org.uk/cfs-me-and-covid19-dr-alastair-miller-december/ eta: if anyones interested Dr Miller is on twitter
  10. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    "Marco Longhi Conservative, Dudley North To ask the Secretary of State for Health and Social Care, if will he make an assessment of the potential merits of reclassifying (a) myalgic encephalomyelitis and (b) chronic fatigue syndrome as a disability. Hansard source (Citation: HC Deb, 4...
  11. Sly Saint

    Fatigue outcomes following coronavirus or influenza virus infection: A systematic review and meta-analysis : 2020 Chalder et al

    preprint https://www.medrxiv.org/content/10.1101/2020.12.04.20244145v2 https://www.medrxiv.org/content/10.1101/2020.12.04.20244145v2.full.pdf
    • Sly Saint
    • Thread
    • 2020 chalder coronavirus fatigue flu meta-analysis post infection systematic review
    • Replies: 8
    • Forum: Long Covid research
  12. Sly Saint

    ‘Help Holger now’ video about a Swedish man with very severe ME

    from the photo that could be Whitney; maybe someone could tweet Janet Dafoe? eta: to get more coverage
  13. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

  14. Sly Saint

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

  15. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Question for Department of Health and Social Care Chronic Fatigue Syndrome Jim Shannon MP To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with myalgic encephalomyelitis/ CFS by (a) age and (b) gender in each of the last five years. Asked 25...
  16. Sly Saint

    ME/CFS services in the United Kingdom

    Job ad in Liverpool Senior Practitioner Psychologist https://www.reed.co.uk/jobs/senior-practitioner-psychologist/41516087
  17. Sly Saint

    Raynaud's Syndrome in Fibromyalgia and ME/CFS

    https://www.verywellhealth.com/raynauds-syndrome-chronic-fatigue-716185
  18. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    IAPT, No Better Than Placebo? http://www.cbtwatch.com/iapt-no-better-than-placebo/
  19. Sly Saint

    BPS attempts at psychologizing Long Covid

    " Using low intensity interventions to help people recover after COVID Tuesday 12 January 2021, 1pm – 3pm"
  20. Sly Saint

    IiMER : Caring for Someone with Severe ME

    https://www.investinme.org/20CNY/20CNY08adv.shtml
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