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  1. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Covid: Your questions answered by an expert studying the condition https://inews.co.uk/news/health/long-covid-what-coronavirus-symptoms-women-bmi-age-signs-783948 given that we are all being told 'long-covid' is a 'new' condition, I'm not sure how anyone can call themselves an 'expert'...
  2. Sly Saint

    The ME Association Weekly ME/CFS Research Round-up - 2020

    https://meassociation.org.uk/2020/12/the-me-association-me-cfs-research-round-up-4/
  3. Sly Saint

    The troubled history of psychiatry

    2019 Challenging Stigma: Should Psychiatrists Disclose Their Own Mental Illness? - Psychiatry Advisor https://www.psychiatryadvisor.com/home/topics/mood-disorders/depressive-disorder/challenging-stigma-should-psychiatrists-disclose-their-own-mental-illness/
  4. Sly Saint

    The troubled history of psychiatry

    Article from 2013 in the Guardian Psychiatrists: the drug pushers Will Self https://www.theguardian.com/society/2013/aug/03/will-self-psychiatrist-drug-medication
  5. Sly Saint

    ‘Girl in the Window’ From award-winning author Penny Joelson

    very critical review. included https://www.booktasticallymazing.com/post/the-girl-who-wasn-t-there-book-review
  6. Sly Saint

    Age-related fatigue is associated with reduced mitochondrial function in peripheral blood mononuclear cells : Herpich et al 2020

    https://www.sciencedirect.com/science/article/abs/pii/S0531556520305258?dgcid=rss_sd_all
  7. Sly Saint

    NICE Statement about graded exercise therapy in the context of COVID-19

    the tweet from the RCPH is no longer available. I hope someone, somewhere took a screen shot, as it would be good to collect these statements from large healthcare orgs. to demonstrate to NICE just how much things need to change.
  8. Sly Saint

    Perfectionism, depression and anxiety in chronic fatigue syndrome: A systematic review, 2020, Cherry et al

    Starts from the Beard Mcevedy/ neurasthenia stance. 2 papers cited: one based on a survey done in Canada 2000/2001 the other " This material is based primarily on our experience at the Outpatient Fatigue Clinic of the Department of Internal Medicine and at the Depart- ment of Psychiatry, Osaka...
  9. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    NYC Health COVID-19 Updates Dec 3 2020 https://www1.nyc.gov/assets/doh/downloads/pdf/covid/providers/covid-19-providers-dear-colleague-updates-12032020.pdf
  10. Sly Saint

    European Parliament questions

    P-005482/2020 Answer given by Ms Gabriel on behalf of the European Commission (4.12.2020) https://www.europarl.europa.eu/doceo/document/P-9-2020-005482-ASW_EN.pdf
  11. Sly Saint

    Workwell Foundation: fundraising

    https://workwellfoundation.wedid.it/campaigns/8320
  12. Sly Saint

    Event: Grand Rounds: Pathophysiology of Exercise Intolerance in Chronic Fatigue Syndrome Event Date: May 5th, 2020 David Systrom, MD

    A complete (preload) failure Paolo Maccallini https://paolomaccallini.com/2020/11/24/a-complete-preload-failure/
  13. Sly Saint

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020), Nepotchatykh, Moreau et al

    New Test for Chronic Fatigue Syndrome Could Help COVID-19 Patients https://www.verywellhealth.com/cfs-me-diagnostic-test-covid-19-5089344
  14. Sly Saint

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Merged thread full article https://meassociation.org.uk/2020/11/manx-radio-turn-up-the-volume-for-specialist-me-cfs-service-on-the-island/
  15. Sly Saint

    UK - NICE guideline on Long Covid

    so this is likely to be around the deadline for submission for comments on the draft ME guideline. I'm not sure if this is a good or bad thing. Things that may arise in the LC guideline might have some bearing on the proposed contents of the ME guideline. I'm guessing some on the ME NICE...
  16. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Insurers must prepare for 'Long Covid' https://www.covermagazine.co.uk/news/4024359/insurers-prepare-%E2%80%98long-covid%E2%80%99
  17. Sly Saint

    Closed Recruiting: Measuring the Impact of (ME/CFS) on the Patient and Family using the EQ5D and FROM-16 questionnaire

    Merged thread from MEA website " We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members. This is a short and simple online survey designed to be accessible to all adults 18+, including...
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