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  1. Sly Saint

    New Documentary "Living with Chronic Fatigue Syndrome"

    why 'Living with Chronic Fatigue Syndrome'?, (tags 'fatigue' and 'chronic fatigue'). eta: have watched it now, shame about the title because it was good.
  2. Sly Saint

    News from Doctors with ME

    interview with her on Sky News https://www.s4me.info/threads/article-guardian-first-year-of-pandemic-claimed-lives-of-25-young-people-in-england.21404/#post-356529
  3. Sly Saint

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    Panorama's Long Covid: Will I Ever Get Better? will be on BBC One at 19:35 BST on Monday 12 July and on BBC iPlayer (UK only) https://www.bbc.co.uk/news/health-57776010
  4. Sly Saint

    Article Guardian: First year of pandemic claimed lives of 25 young people in England

    didn't know where to post this; possibly a bit political but worth a watch
  5. Sly Saint

    News from Scotland

    The Long Covid timebomb: We could soon have 10,000 new cases a day https://www.scotsman.com/health/coronavirus/the-long-covid-timebomb-we-could-soon-have-10000-new-cases-a-day-3303616
  6. Sly Saint

    Article Guardian: First year of pandemic claimed lives of 25 young people in England

    https://www.theguardian.com/world/2021/jul/09/first-year-of-pandemic-claimed-lives-of-25-youngsters-in-england (I'm guessing the seminar is https://www.s4me.info/threads/webinar-the-royal-society-of-medicine-spotlight-on-long-covid-8-july-2021.20722/) eta: so she's one of the countrys leading...
  7. Sly Saint

    News from Canada

    Canadians with long COVID: Sick and, increasingly, worried they’ll go broke https://globalnews.ca/news/7998787/long-covid-canada-long-term-disability-sickness-benefits/
  8. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    2019-2020 report on IAPT services https://files.digital.nhs.uk/B8/F973E1/psych-ther-2019-20-ann-rep.pdf I can't figure out where the relevant data is out of this lot...
  9. Sly Saint

    Covid-19 vaccination experiences

    I was quite shocked when I had a brief chat with our postlady ( who at the outset of the pandemic was very concerned about her colleagues not adhering to social distancing, mask wearing etc) who seems to have been convinced by the 'party line'; that everyone who have had their 2 jabs are...
  10. Sly Saint

    Covid-19 vaccination experiences

    Merged thread https://johnpavlovitz.com/2021/07/06/our-family-got-vaccinated-then-we-all-got-covid/
  11. Sly Saint

    Mild SARS-CoV-2 infection modifies DNA methylation of peripheral blood mononuclear cells from COVID-19 convalescents, 2021, Huomen et al

    Preprint Abstract Background: Coronaviruses such as SARS-CoV-2 may circumvent host defence mechanisms by hijacking host proteins, possibly by altering DNA methylation patterns in host cells. While most epigenetic studies have been performed in severely ill COVID-19 patients, studies on...
  12. Sly Saint

    Shadow Burden of Undiagnosed (ME/CFS) on Society: Retrospective and Prospective—In Light of COVID-19, 2021, Araja et al

    Shadow Burden of Undiagnosed Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) on Society: Retrospective and Prospective—In Light of COVID-19 Abstract Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a poorly understood, complex, multisystem disorder, with...
  13. Sly Saint

    United Kingdom: News from Forward-ME Group

    Those minutes make for a very interesting read, particularly given all the 'players' taking part and that it was while the PACE trial was ongoing. I've put it on the Wayback machine incase it gets deleted. Given recent events " Lightning Process: Charles Shepherd had been made aware of a...
  14. Sly Saint

    United Kingdom: News from Forward-ME Group

    not new or news but am curious about something on the Forward ME website under Presentations; http://forward-me.co.uk/presentations/ there is a presentation (from 2009) by Esther Crawley about the formation of the CCRNC (CFS/ME Clinical and Research Network and Collaboration) that I've never...
  15. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Claire Hanna Social Democratic and Labour Party, Belfast South To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that clinical studies for (a) ME, chronic fatigue syndrome and (b) long-covid are conducted using appropriate outcome criteria. Tweet...
  16. Sly Saint

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    (Deepti Gurdasani @dgurdasani1 Senior Lecturer @QMUL Epidemiology, statistical genetics, machine learning.)
  17. Sly Saint

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    "Funding This research was funded by the Linbury Trust (Grant no: LIN2623). During data collection, EC was funded by a National institute for Health Research Senior Research Fellowship (SRF-2013-06-013). ML is funded by the National Institute for Health Research (Doctoral Research Fellowship...
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