Search results

a response from AfME would be good.

superb piece. @Jonathan Edwards :heart: I don't know what the rules are re copyright but your commentary deserves to be published as it is not only relevant to ME/CFS research.

PW: “It is also remarkable that the committee use the symptom of post-exertional fatigue as a reason for not providing GET" surely they (NICE) used PEM ie post exertional malaise not fatigue? again nervous about the use of 'cause'; echos of the BACME statement. Does this also extend to the...

when one of the many issues with PEM is often aphasia this approach is surely not the best(?) @Carolyn Wilshire

see also https://www.s4me.info/threads/adhd-drugs-for-chronic-fatigue-syndrome-how-well-do-they-work.1204/

CAI Seminar Series: Detection of brain dysfunction in CFS using multimodal brain MRI Detection of brain dysfunction in Chronic Fatigue Syndrome using multimodal brain MRI: Presented by Dr Leighton Barnden, Imaging Consultant, National Centre for Neuroimmunology and Emerging Diseases, Menzies...

hmm Recovery from chronic fatigue syndrome after treatments given in the PACE trial https://pubmed.ncbi.nlm.nih.gov/23363640/

queue...........:emoji_musical_score: 'the sun'll come out tomorrow......'

my GP told me 'in ten years time this will all seem like a bad dream'. That was nearly 20 years ago.

email from #MEAction UK

from that series of blogs https://www.healthcarehubris.com/post/factor-1-clash-of-healthcare-models-biomedical-versus-bio-psychosocial

The mink farm thing is getting a lot more coverage in the UK. What's the science behind mink and coronavirus? https://www.bbc.co.uk/news/science-environment-54842643

problem is not only with digital therapies: Mental Health Sufferers Vote With Their Feet and Government Does Nothing At All from comments: http://www.cbtwatch.com/mental-health-sufferers-vote-with-their-feet-and-government-does-nothing-at-all/#comments

eta: hmm, says the person who has shares in said delivery system which avoids the need for RCTs, or produced on the back of mis-represented RCT results..... see Mahana Therapeutics.

https://www.jmir.org/2020/10/e17049/

https://bmcfampract.biomedcentral.com/articles/10.1186/s12875-020-01302-x

"Notice of Correction to Specific Areas of Research Interest for PAR-20-168 "Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (R21 Clinical Trials Not Allowed)" Notice Number: NOT-NS-21-013 Key Dates Release Date: November 5, 2020" The bit in italics has been completely...

deconditioning again:banghead:: https://www.theguardian.com/society/2020/nov/06/will-we-have-energy-keep-going-occupational-therapists-brace-for-covid-second-wave

Yes, and #MEAction Scotland. I think @Jonathan Edwards described @Emsho Emma Shorters 'testimony' at the Scottish Parliament as one of the best pieces of ME advocacy. Without them I doubt Carol Monaghan would have got involved. Certainly it cannot be denied that #MEAction UK and #MEAction...