they could do what #MEAction australia did as posted above:
eta:
I don't know how these things work but shame they couldn't take over The ME Patient foundation (incidentally the fundraising page still seems to be operational).
https://www.s4me.info/threads/the-me-patient-foundation.10118/page-3
Long COVID Patients Warned of Damaging Exercise Programme
https://www.meaction.net/2020/11/03/long-covid-patients-warned-of-damaging-exercise-programme/
for info:
https://www.s4me.info/threads/should-this-forum-make-a-position-statement-on-the-dissemination-of-claims-of-a-connection-between-me-and-spinal-problems-requiring-surgery-discuss.16506/
FRONTIERS in BIOLOGY: Progress and challenges for a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) diagnostic
Nov 11, 2020 (Wed) | 4:00 PM -5:00 PM
via Zoom : Stanford, CA
Department: Biochemistry
Contact: Maria | - | marilen at stanford dot edu
Presenter(s):
Ron Davis Stanford...
Not quite sure what this is but all references to Myalgic Encephalomyelitis/Chronic fatigue syndrome are to be removed (can't cut and paste relevant bits that show redactions p41/42):
below is one of them.
https://www.ama-assn.org/system/files/2020-10/nov2020-mss-ref-com-report.pdf...
This article is a preprint and has not been certified by peer review [what does this mean?]. It reports new medical research that has yet to be evaluated and so should not be used to guide clinical practice.
https://www.medrxiv.org/content/10.1101/2020.10.27.20220715v1
Rapid Response:
Re: Virology, transmission, and pathogenesis of SARS-CoV-2 ; comparison of post viral symptoms in previous outbreaks.
30 October 2020
Derek Enlander
Physician
Mount Sinai Medical Center ,. New York
1035 Fifth Avenue New York 10028
full text...
Not a new study.
Reduced parasympathetic reactivation during recovery from exercise in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS)
2015
https://www.physiotherapyjournal.com/article/S0031-9406(15)02014-3/abstract
@PhysiosforME you might be interested in these authors...
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