The two Heim et al CDC child trauma studies used the so-called empiric criteria (Reeves et al, 2005). I had this letter published challenging those criteria:
https://www.researchgate.net/publication/44655939_Criteria_used_to_define_chronic_fatigue_syndrome_questioned
I like the article, but just sent them the following short note:
The usual claim is that 25% have severe ME. However, that doesn't just include the bedbound, but also the housebound and maybe also the virtually housebound.
I'd say there's a good/very good chance that Peter White will use his own study from the Lancet. They attempted to measure their fitness after they became ill and made inferences about the pre-illness fitness levels!
I discuss problems with it in these comments...
There is no control group.
Here are some research studies that found no difference in variations in activity patterns when a control group was used:
"The heterogeneity in the physical activity pattern between subjects within the CFS and control group did not differ."...
They have managed to get a large amount of info across in the 10 Q and A's.
Very impressive to see how up-to-date it is: possibly the majority of papers were from 2019 & 2020.
Would recommend, though I'm unsure of its status for CPD outside the UK?
https://www.meassociation.org.uk/2020/05/me-awareness-dialogues-for-a-neglected-illness-a-wellcome-project-by-natalie-boulton-and-josh-biggs-27-may-2020/
Nice overview by the ME Association of the various films that have so far been released as part of this project, with lots of photos and links.
COVID-19 and Post Viral Fatigue: Growing Recognition
I haven't watched this video myself so far, but saw a few people praising it. I recall watching another of his videos a few weeks ago and for some reason thought he was a medical doctor, but that's not the case:
"COVID-19 May Cause Hallmark ME/CFS Post-Exertional Malaise"
https://themighty.com/2020/05/covid-19-me-cfs-post-exertional-malaise/
Note that this article is largely based on the account of one person who got ill with Covid-19 10 weeks ago
Just in terms of educating doctors with it:
With two of the earlier videos from this group, we in the Irish ME/CFS Association and the Irish ME Trust applied for education credits for an educational event for GPs (which also included a live speaker and a Q&A session). The credits were obtained...
My initial post has Twitter and Facebook links that can be used to share it.
Here are links on Pinterest and Tumblr:
https://www.pinterest.ie/pin/174584923043550850
Merged thread
New video on severe ME and very severe ME
As my mother and I were filmed for this project, I just got an email that one of the videos has been made public.
It is supposed to be here: http://www.dialogues-mecfs.co.uk/films/severeme/ but currently is available here:
Discusses...
Post to my Facebook page:
"i got a response from the Center for Solutions for MEcfs saying ' we certainly appreciate the potential for the development of MEcfs-post-covid-19 infection and we are working on multiple fronts researching this.'"
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