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Very hot sore throat at the beginning of my ME and POTS onset and the same at my very severe onset.

I had just turned 48 when I experienced my first missed period. This hormonal change hit me very hard. I felt weaker physically, more unwell, began experiencing hot flashes that became very severe a few years later. I began having unpleasant side effects to antibiotics. Not everyone seems to...

@ScottTriGuy I experienced severe rigors a few years ago. The deep shaking is deeply nauseating. I was also breaking out in a hot sweat all over too, going from one to the other. I had lung problems at the time. I do experience bouts of what you described above with my ME. If I have been...

NZ time Saturday 11.A.M. I will donate again in the next few days.

Welcome @Annaiom It was good to hear your experience and I'm pleased to hear you found one that suits. I'm looking forward to getting one now.

Yes, I'll say @Wonko

@ProudActivist Thanks, I'll keep that in mind when I'm trying the chairs out so that I don't get one that is not long enough to rest my feet on properly.

@oldtimer thanks for trying your chair out. Interesting to hear how it feels for you. I'll take my camera with me when I go and if I find a recliner that feel good I'll post pic of it. I'm not going to hurry to find one, so will look at as many as I can.

@WillowJ I'll look out for some wedges as well. I love the bed I bought a year ago. We don't get to lie in them for long when choosing a new bed, so I'm glad the one I did choose has turned out well.

@Dechi Thanks, I did wonder if Lazy Boy was a brand name. Yes, I can't afford to buy an expensive one so will be looking for the best at the lowest cost possible. There is one furniture shop that has quite a variety of recliners from looking at their web page and one bus trip away. I'd love to...

@Dechi @WillowJ @oldtimer @ProudActivist @Trish @Nellie @Wonko @Annaiom @Adrian Thanks for your replies. Lots of good stuff there.

I'm thinking of getting one for sleeping in for when I get a cold or for when my COPD flares up. Does anyone else sleep in them? Are they comfortable enough? I usually pile up pillows in bed when I need to sleep upright, never that comfortable really, but when you have to you have to. Are...

Donated. Will donate a second time in 2 weeks. Thanks.

@Wonko Thanks, I deleted my post above before you posted. I had asked whether I would be charged more for my NZ dollars donated. I tried to donate just a while ago and it wouldn't go through. I think it is because I haven't activated this particular bank card which was renewed last October. I...

For me, looking back, the OI started 2 days before my cold-like flu ME onset. It was so bad, like nothing I had experienced before in my life. I had to leave a class where I was studying part time and see the closest doctor in town (not my own doctor). It was a bizarre consultation considering...

@Mij Yes, I constantly rub my hand over my forehead when it gets to this point. It is the body in distress. When Dr Klimas came out to NZ years ago I went along to listen. I couldn't sit any longer than a half hour. I was rubbing my forehead about 20 minutes in and could no longer concentrate...

I can't remember, did we ever send a thank you card to Fluge and Mella?

Standing is the worst for me as well. Coming to a stop after walking was difficult when I had severe ME. It felt like my body was still in motion after I had stopped. So internally it felt like I hadn't stopped walking when I had. I just remembered that I used to shuffle into a full stop to...

I don't think my POTS/OI is even recorded in my GP notes and I have suffered severely with it. The reason for it not being recorded is that I didn't know what it was. It was just another awful symptom of my ME. This is why we need a speciality for ME and doctors who understand this part of our...

It's so good to have researchers looking into the microbiome and I hope continue to look. I had a major sudden change in microbiome composition (vaginally, sorry everyone, TMI !)and I think this dysregulation made me vulnerable to getting ME and OI years later via a flu. I don't think the fix...