Search results

  1. Sean

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    From some old notes about Wessely's role in it PACE: The PACE trial identifier says: "(S)taff at the Clinical Trials Unit (CTU) [...] will be primarily responsible for randomisation and database design and management [...], directed by Professor Simon Wessely, in collaboration with Professor...
  2. Sean

    Trial By Error: And Another Prebuttal…

    Such modesty.
  3. Sean

    Pacing - definitions and sources of information

    Worth highlighting.
  4. Sean

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Generally a pretty good and welcome article. Thank you, Ms Bastian. A couple of quibbles: Well, they asked a single self-report question about it, which I wouldn't call a reliable measure. Pacing is not about exercise, it is about managing existing limitations on daily activity. If pacing is...
  5. Sean

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    So the first thing they should have done was establish the existence and nature of deconditioning, and measure activity. The assumptions are always the first thing to test. Progress is usually made in science by abandoning an unjustified assumption or preconception. But they have never tested...
  6. Sean

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    It's an important step in the right direction. Credit where it is due. Still one more important step to take though: There is no methodologically sound evidence that any psycho-social treatment actually delivers any rehabilitative, let alone curative, benefits. It may (may) offer some generic...
  7. Sean

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    Bit hard to have faith in the HRA when they get the availability of data issue so wrong.
  8. Sean

    "Body Reprogramming: Patient guide for recovery using the Hyland model"

    Well it makes a change from being called a dangerous activist, I guess.
  9. Sean

    Trial By Error: Some Thoughts About an Upcoming Article

    Entirely deliberate on their part. They have planted the most appallingly outrageous smears into every level of the debate, including portraying themselves as both the victims and heroes of the story, with minimal risk of those smears being properly tested, let alone being held to account for...
  10. Sean

    A general thread on the PACE trial!

    The peasants are revolting!
  11. Sean

    Trial By Error: Some Thoughts About an Upcoming Article

    Agree with those who think that this forthcoming article is a sign that the work done by @dave30th is doing serious damage to the BPS clown show. Also agree that we should wait and see what it actually says, and carefully consider our responses. Quite possible that we could use this to further...
  12. Sean

    United Kingdom: BACME Guidelines for Severe ME, 2019 and 2024 update

    Arrogance in thinking they have a superior insight, and cowardice in refusing to admit that they haven't.
  13. Sean

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    All I can say is that I hope they are on the right track. Otherwise, a big waste of time and money.
  14. Sean

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    This decades long and completely avoidable catastrophe needs serious punishments for the main offenders. A clear message needs to be sent to anybody thinking about trying this shit again. The PACE/BPS cult could not have got away with this on their own. Not even close. They needed sustained...
  15. Sean

    A general thread on the PACE trial!

    Only because the objective outcomes didn't deliver. If the objective outcomes had supported the subjective outcomes, and especially if the correlation was strong, the PACE and BPS crowd would have been screaming that from the rooftops, and rightly so. But the objective didn't support the...
  16. Sean

    A general thread on the PACE trial!

    Just another spiv from the old boys' network who didn't do his due diligence. And once they have made their public stand, particularly in the manner he has, they cannot walk it back without serious loss of face and reputation. This is how the PACErs and BPS cult operate. Co-opt, compromise, and...
Back
Top