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Does this offer any clues to the identity of the show? Interesting that it’s a specific presenter in the frame, even at this early stage. Maybe a show built around a single reporter, I’d assume on a terrestrial channel.

That’s excellent news, just the sort of TV investigation we were discussing recently. I don’t blame the MEA for the people on FB getting the wrong end of the stick and assuming that “revisiting” GET means repeating it.

Wut.

It doesn’t make any sense. Lumping together ME and LC with environmental medicine and post-trauma syndromes? With the aim of avoiding “wastepaper diagnoses”? But that’s precisely what they are going to achieve: a term with very loose criteria which will be catnip for FND clinicians and...

Touchscreens must vary considerably, then. Both from android to ios and likely from device to device. I am very loyal to the ipad mini - this is my third - but the OS is glitchier than other macs, or perhaps devs don’t test on it sufficiently.

Most of us have probably minimised and tried to sound positive and offered false hope of our imminent recovery when explaining our illness to customers and bosses. The relationship that minor slebs have with their fans is similar.

There are going to be so many different hardware and connectivity and muscular-skeletal factors impacting on response that it’s probably only useful for tracking individual performance (assuming all those factors remain stable) rather than using it as a benchmark.

Did anyone else find that it took several presses to make the numbers stop, and that pressing the screen was more likely to change the image size? Average response time= 2601 msec over 14 attempts. Which I don’t think is a fair reflection of my psychomotor vigilance.

There’s still an embedded assumption that ME/CFS patients will need psychotherapeutic help in order to adjust and adapt. And there’s a giveaway suggestion that a middle ground needs to be found between too much and too little rest. Not wholly convinced.

There should be human liberationists, ones with dreadlocks and army jackets and balaclavas and arts degrees and nose rings, breaking into Harrison’s Pain Lab and freeing the subjects from the MRI torture chambers, even if they are ill-equipped to survive in the sylvan outskirts of Reading. I...

I have very mixed feelings about mainstream coverage of disability and disabled people which centres on inspirational achievements. It’s as if there are “good disableds”* who overcome adversity and hop up and down mountains on their prostheses, for charity, and “bad disableds” who stay at home...

Why do charlatans always have such gleaming teeth?

Yes, the quote you recall is rather more damning than the one cited by @John Mac

Which is still technically true, whenever a biomarker materialises.

Well, the other one shouldn’t have fallen foul either.

That’s not really what the thread does at all. In summary, it best serves to show that all kinds of prejudices are at work when symptoms are dismissed, and that at least some doctors are getting better at recognising those prejudices. Which is laudable. One contributor suggests that clinicians...

The problem is that in theory benefits are based on capacity, not diagnosis, which is as it should be - but that leaves a lot of room for prejudice against particular diagnoses, especially those without biomarkers, to influence capacity assessments.

Yes, that makes sense, although you don’t have to be John Stuart Mill to prefer a world where 99% of pwME access benefits and 1% are shafted, to the one we have currently.

In the case of ME/CFS, though, a biomarker which correlates highly with the accepted diagnostic criteria would secure victory against psychologists, insurers and benefits assessors, so it’s perfectly reasonable for us to be almost as excited about biomarkers as the prospect of a cure, and very...

Hawthornes would presumably have been particularly effective, whether or not they were plastic.