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  1. Shadrach Loom

    Contesting the psychiatric framing of ME/CFS, 2017, Spandler and Allen

    As evidenced by the talk of “post exertional fatigue”.
  2. Shadrach Loom

    USA: Dr Jacob Teitelbaum

    https://secure.endfatigue.com/about-us/jacob-teitelbaum-md Also believes that autism can be cured by eliminating allergens. This is my point re Jarvis in the other thread - it’s the ones that build careers on lies who deserve dedicated opprobrium and pitchforks, not the sceptical...
  3. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    It would be a bad faith argument if it was a seriously expressed one, rather than simply a below-the-line howl of pedantic rage. Personally, I’d save my iatrophobic wrath for doctors who tell ME patients to stay active and avoid deconditioning, or who deny them pain relief, or who steer them...
  4. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Toxic filth is going a bit far. He’s right to dislike the name ME on accuracy and pedantry grounds, and it’s fair enough to call it a syndrome. Ramsay’s Syndrome would be fine as far as I’m concerned.
  5. Shadrach Loom

    Let's talk wheelchairs and mobility scooters

    https://www.tramper.co.uk/press/561247bea00324f026e278d3 List above of all public parks and gardens and nature reserves which hire or lend Trampers. Has anyone used one and if so, what was the suspension and comfort like on uneven paths? Edit - I have booked a Tramper for a two-mile...
  6. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Which is why Tom is likely right to suspect there is a press release somewhere.
  7. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    The problem is that the people in groups 2) and even in 3) who skim-read the article won’t be checking Garner’s position for logical fallacies, or thinking seriously about any of the issues involved. They will just see another clash of experts and think “looks like the jury is still out on...
  8. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    The comms muppetry is such a shame, when the response they wrote was actually quite good.
  9. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    The Guardian differs from other UK broadsheets in that it can be read for free online without clumsy paywall circumvention tools, so it has a substantial readership, second only to the BBC site. It is taken seriously by public servants in health and care professions, and it is the house...
  10. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Yes, that’s entirely true. But they do have an aversion to being on the wrong side of history, and it might be telling that this article didn’t come from the health or science desks.
  11. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Meh. That’s for Charles Shepherd, I guess. I hope he does. But I really want to know who took the call from Chalder or Garner and took the decision to get an education reporter to take dictation from them, and how that person fits into the editorial hierarchy. What we need is for someone to...
  12. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    The Graun splash is something of a PR coup, sadly. I hope NICE’s rebuttal gets traction with broadsheet rivals - but they’ll probably spend too long working on it.
  13. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    NICE were pretty robust in responding to the Graun’s otherwise uncritical regurgitation: A Nice spokesperson said: “We reject entirely the conclusions drawn by the authors of this analysis, and in particular their conclusion that Nice has not followed international standards for guideline...
  14. Shadrach Loom

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Article mainly sourced to Chalder and Garner, so as one would expect. Annoying that it is so prominent online. It would be better if outraged patients didn’t click on it, and it was superseded by the latest twists and turns of silly-season scandals. Pretty robust response from NICE, which is...
  15. Shadrach Loom

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Okay, how about “responsive when there is a clear and uncontroversial case for minor amends to an article”. Every writer and editor is defensive when the main thrust of a piece attracts complaints. I was thinking, though, that someone should get in touch with whoever curates their style guide...
  16. Shadrach Loom

    Lightning Process - discussion thread

    I did rather like the picture of Kenneth Clarke pretending to be a zombie.
  17. Shadrach Loom

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    My only relevant experience has been as an expert witness in a weird professional negligence civil case that has been going on for years. If that is typical, we shouldn’t be imaging a poor sod with ME being interrogated by a bewigged bully. Instead, counsel would duke it out via correspondence...
  18. Shadrach Loom

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    That said, and to your point @JemPD , a failed case and a “post hoc sed non propter hoc” ruling could have significant negative implications for us. I do think, though, that there’s something worthwhile in the idea of advocacy by litigation, and that the best way to go about it is with a one-off...
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