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Hadn’t come across Bergstrom before, but he made his name with a manifesto entitled Calling Bullshit, so I guess he’s not that fussed about being invited to the genteeler academic gatherings where you can reliably expect cakes to be served and criticism to be tactful.

What @Braganca says still resonates with me, though, because PEM is tricky to pin down. Exertion-related symptom fluctuation is absolutely a thing, and we know it when we see it, but it’s difficult to differentiate with absolute certainty between variations in baseline illness, and variations in...

Some interesting points in that Mastodon thread, including that plagiarism detectors are easily triggered by stock phrases in results sections, so authors have to sacrifice intelligibility to meet automated acceptance criteria.

I’d have hoped that Mount Sinai researchers would be able to come up (or down) with some actual tablets.

Yes, but also with a strong sense that the onus is on the reader to do their due diligence. The original phrase “caveat emptor” (let the buyer beware) is used by lawyers and others wanting to establish formal limits on the obligations of vendors.

Prusty doesn’t seem hugely concerned about consistency of narrative, and he may not always consider the potential impact of tweets before he presses send. But. Thursday is obvious an incredibly important day in the ME calendar and a force multiplier on any academic findings publicised that...

If emails bounce back, and the forum really wants someone to reach out to Katie, I am only one connection from her on LinkedIn (and am tribally affiliated to public sector transformation leads), so would be happy to send a message if formally requested to do so.

Xenforo (the forum software) is great if you’ve been using it since the turn of the century, and if your primary device is a steam-powered affair with a mouse and a keyboard. It’s nowhere near as intuitive or mobile-friendly as modern social platforms, though, and everyone has a learning curve...

You might find the gait thread of interest, alongside the other ones that MSEsperanza flagged. https://www.s4me.info/threads/gait-in-me-cfs.32055/

This would best be addressed by @rvallee . You’ve quoted my weak pun in reply to his post, thus tagging me rather than him.

Interesting for me that there’s little confidence in amitriptyline, which is what GPs tend to prescribe for chronic pain, at least in the UK. I’ve been taking 15mg daily for two years. I have no real reason to believe it’s doing any good for pain, but vaguely suspect it contributes to...

https://www.cochrane.org/CD014682/SYMPT_how-effective-are-antidepressants-used-treat-chronic-pain-and-do-they-cause-unwanted-effects Key messages • We are only confident in the effectiveness of one antidepressant: duloxetine. We found that a standard dose (60 mg) was effective, and that there...

Bump. I’m sick of planning life around minimised stair journeys, and of arms aching from being used as auxiliary legs. Has anyone with ME ever regretted having a stairlift fitted? @Forestvon or @Louie41 - has anything happened since 2019 which has changed your mind about your stairlift? I hit...

They’d read that and just assume you have a gilt complex.

Sounds good. On the other hand, you can lead an NHS specialist ME service to toolkits, but you can’t make them think.

The phrase “survival of the fittest” is something of a millstone round the neck for Darwinists: it means the organism best suited to an environment, not the physically fittest specimen. I rather like the idea of selfish genes, making humans the accidental by-product of a selection of components...

Nice Grauniad article about cosmologist and pwLC Catherine Heymans, who is challenging the standard cosmological model with novel accounts of dark matter and dark energy. Prior to covid, Heymans suffered from EBV and glandular fever...

Muscle weakness is a cardinal feature of this illness for lots of us, though, even if it’s bundled in with “fatigue” to fit the criteria.

Those should just be avoided, full stop. Covid or no covid. Actually, ME or no ME.

“On Reddit” is the “in mice” de nos jours.