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I have been listening to a podcast episode with a doctor who makes a number of strange claims about ME (and other things). It is in Swedish but I have transcribed some parts and hope that google can help you translate into English. 4health - 314: Dr Cecilia Tibell - ME/CFS. Hur blir man frisk...

Article from Agnes Arpi about the situation in region Västerbotten. Google translated: ”ME patients' hopes were dashed In 2017, the need for a specialist clinic for ME sufferers was identified in Västerbotten. In 2022 there is one, but the intermingling of roles and profit interests is...

Article from Agnes Arpi about the situation in region Västerbotten. Google translated: ”ME patients' hopes were dashed In 2017, the need for a specialist clinic for ME sufferers was identified in Västerbotten. In 2022 there is one, but the intermingling of roles and profit interests is...

More about the project ”Tänk rätt från början” and the lies Region Västerbotten tells about it. Google translated version here: https://mitteremitage-wordpress-com.translate.goog/2022/08/07/en-hemlig-experimentverkstad-del-1-hemlighetsmakeri/?_x_tr_sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

Because it is summer vacation in Sweden and everything stops? I think they have chosen the time carefully. Hopefully the media will eventually wake up. And no, that cannot be allowed. Thanks. I haven't thought about anything else in a year. ❤️

A new blogpost about the agreement and the disgusting things I found in the added documents. ”Now that I have finally read the project description without confidentiality markings, I can tell you that it appears with all the desired clarity that what has now happened has been the plan from the...

Unfortionatly the Västerbotten region signed an agreement with Masano Health AB on rehabilitation for people with ME last week altough all conflicts of interests. Google translated blog...

New blog about Masano Health now erasing the videos I had critizised in my earlier text. And making changes on their website. And more. Google translated version of blogpost here...

Merged thread A very complicated story (ME clinic Västerbotten and Masano Health) I have written down everything I know about the ME clinic in Västerbotten and other activities connected to them. It's a horrible (and long) story. Here is Google translated short summaries for the nine posts...

I have written a comment to the report on my blog. ”Okay. I have tried to read and understand the Swedish Social Insurance Agency's new report on differences in refusal of sickness benefit, or at least parts of it. Link to the report can be found at the bottom of this post. I was going to...

Noone who knows anything about the use of forget me not in the international ME-community from a historical perspective? RME claims that it is ”an international symbol for the disease ME.

They have changed their original post after I wrote this (and a blogpost about it) from lost loved one to missing loved one. The next post is still use ”lost”. ”Förgätmigej (Forget ME not) har historiskt symboliserat en förlorad älskade, och därför blivit en internationell symbol för sjukdomen...

I totally agree - it’s important for many reasons.

Ah. Thank you for this. I found this part of the article worrying together with the part where his talking about that he overexert himself as soon as he gets a little bit better thinking that he maby is back to normal: ”- You can get ME in many different ways and since you can get it in many...

Ok, have never heard of that.

Yes I have lerned that a lot of dementia/Alzheimer organsationens use is as a symbol of memory loss. min Sweden we have an organsation for suicidprevention and support who use it as their logo.

Okay, they are cute but I would have preferred something that is not associated with missing out on someone who has died.

Swedish patientorganisation RME uses the flower forget me not as their symbol this International ME-day. What is the international history for this choise? Anyone knows? Their explanation (Google translated): ”Forget me not (Forget ME not) has historically symbolized a lost loved one, and...

I have written a text in response to the interview with Bertilsson in TV4 and Juhlin in GP. ”Yesterday, Myalgic Encephalomyelitis (ME) attracted attention in both GP and TV4. Some of what came out were good things, but the day still ended with me screaming. For is totally incomprehensible to me...

Yes. That we should do. And we should talk about the misstreatment and not tolerate discrimination and malpractice. And we should most definitely talk about the ableism in helthcare.