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  1. The ME Inquiry Report

    Sweden: Have the ME and CFS clinic in Gothenburg found a loophole to avoid the diagnosis ME?

    This is very strange. One would like to know what this claim is based on. Is this how the clinic expresses itself in the referral responses or is this the RME's interpretation of patients being denied care/diagnosis?
  2. The ME Inquiry Report

    Sweden: Have the ME and CFS clinic in Gothenburg found a loophole to avoid the diagnosis ME?

    Perhaps it is not just that they lack knowledge but that it is an ideological position of chosen ignorance?
  3. The ME Inquiry Report

    Sweden: Have the ME and CFS clinic in Gothenburg found a loophole to avoid the diagnosis ME?

    I am glad that my texts could be a wake-up call for you. For me, who has been covering these issues for many years now, the growing influence of the BPS lobby has been extremely clear. But I know that I am quite alone in reporting on this issue in Sweden. What do you think is needed for more...
  4. The ME Inquiry Report

    Sweden: Have the ME and CFS clinic in Gothenburg found a loophole to avoid the diagnosis ME?

    Thank you. Well, if I hadn't heard the rumors about them removing and replacing diagnoses, I might also have been fooled by their claim that they diagnose ME using the Canadian criteria. That sounds good, but if you read the Canada criteria, you see that they are not in line with their intentions.
  5. The ME Inquiry Report

    Sweden: Have the ME and CFS clinic in Gothenburg found a loophole to avoid the diagnosis ME?

    Yes, me too. All statements and claims need to be carefully specified and that is what we need. Our demands need to be well supported by the facts and research available. The Swedish ME Association has just thrown out a bunch of unspecified things they want in a debate article. It makes my...
  6. The ME Inquiry Report

    News from Scandinavia

    It seems that the ME and CFS-clinic in Gothenburg thinks it has found a loophole in the Canadian criteria that allows them to avoid establishing the diagnosis of ME in their patients. New thread >> Sweden: Have the ME and CFS clinic in Gothenburg found a loophole to avoid the diagnosis ME?
  7. The ME Inquiry Report

    Sweden: Have the ME and CFS clinic in Gothenburg found a loophole to avoid the diagnosis ME?

    In 2024, a new ME clinic was opened under the auspices of the Västra Götaland region. At the time, the website stated that the focus was on investigation and time-limited treatment and that patients would then have continued care via primary care. Here is my summary of the information that was...
  8. The ME Inquiry Report

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Region Stockholm is training primary care on exhaustion disorder (Swedish utmattningssyndrom) in parallel with training on post-infectious diseases based on the network's ideology. Read more in the thread about Oslo chronic fatigue network...
  9. The ME Inquiry Report

    Oslo Chronic Fatigue Network

    I'm posting samt thing in three different threads because what's happening in Sweden right now is intertwined and it's hard to know which thread to post in. Moderator is welcome to change if it would be strange. In parallel with the Stockholm region's training for primary care for...
  10. The ME Inquiry Report

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Region Stockholm is training primary care on exhaustion disorder (Swedish utmattningssyndrom) in parallel with training on post-infectious diseases based on the network's ideology. Read more in the thread about Oslo chronic fatigue network...
  11. The ME Inquiry Report

    The Mitteremitage/Hermit changes its name to The ME Inquiry Report!

    I have been ill for almost twenty years. The blog has been with me for almost as long, in slightly different contents and forms. In the beginning, it was mainly a diary, eventually a way to reclaim my voice. Today, it's about accountability - and to better match the content, it's time for the...
  12. The ME Inquiry Report

    Unevidenced recommendations of brain retraining in Bateman Horne Centers clinical guide for ME and longcovid

    Yes! They told me yesterday and I just published a blog about it. Link: BHC removes brain retraining recommendation!
  13. The ME Inquiry Report

    The Netherlands: Nederlandse Omroep Stichting (NOS) - Sander Zurhake

    Thank you @dave30th and @Grigor for bringing this to my attention. What Zurhake has done in the Netherlands gives us, who are in similar situations, both hope and tools to resist! In Sweden, we received national guidelines for "post-infectious conditions" that include CBT/GET in the fall of...
  14. The ME Inquiry Report

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Region Stockholm has published the program for a training series of 15 lectures for health care staff in primary care on post-infectious conditions. The information shows that the program will be based on the National Board of Health and Welfare's national guidelines and, like this, will focus...
  15. The ME Inquiry Report

    Sweden: Problematic changes to Region Stockholm's ME/CFS guidelines

    Region Stockholm has published the program for a training series of 15 lectures for health care staff in primary care on post-infectious conditions. The information shows that the program will be based on the National Board of Health and Welfare's national guidelines and, like this, will focus...
  16. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    In the interview with FORTE, Lindsäter says that the treatment they are using in the study is "pretty well proven". I've written a blog post about how what she calls pretty well proven is the same thing that others call the biggest medical scandal of our time. Link (autotranslated): Is the...
  17. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    The fatigue study is funded by FORTE and the Swedish Social Insurance Agency, among others. The call was called "Mental ill health with a focus on rehabilitation, collaboration and a sustainable working life." FORTE has now published an interview about the study with the responsible researcher...
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