Extremely problematic article IMHO. I wrote an open letter to RME (Google translated link):
https://mitteremitage-wordpress-com.translate.goog/2025/01/09/oppet-brev-till-riksforbundet-for-me-sjuka-rme/?_x_tr_sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp
In early October, I mentioned that Viss.nu intends to update the region of Stockholms guidelines for ME in accordance with the National Board of Health and Welfare's national guidelines for post-infectious diseases. I have now been informed that in connection with this revision, the regional...
The responsible individuals at tidskriften Allmänmedicin (the journal General Medicine) claim that the current article is a pure summary, but one of the authors claims something entirely different on their blog.
Read more in my blog post (auto translated)...
I am writing about how the Swedish Association for General Medicine (SFAM) and the journal General Medicine refuse to accept a response to the problematic article.
To Google translated blog...
Swedish healthcare advice 1177 now has a section for healthcare personnel. I have compiled what information the different regions provide to their staff regarding ME. Some regions have very problematic information.
Link to blog post (via Google translate)...
I have contacted the editor-in-chief and the responsible publisher about the article.
More about it in this blog post (Google translated):
https://mitteremitage-wordpress-com.translate.goog/2024/10/27/sfam-gor-sig-till-megafon-for-lobbyister/?_x_tr_sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp
GutMagnific is now marketed on Facebook as relief for ME. The company makes strong claims that 93% of those with ME improve from their product. They frequently refer to research. However, the results from the ME study are still not published. I am writing about this and about European...
According to the medical person responsible for viss.nu, the update of the care program for Myalgic Encephalomyelitis (ME) is done "in close dialogue" with the National Association of ME patients (RME), but RME now writes on its website that this is not correct.
Blogpost...
I have just been told that the Stockholm region's guidelines for ME will be updated in line with the National Board of Health and Welfare's national knowledge support
Read more on my blog (Google translated)...
I have just learned that work is underway to update the local guidedlines in region of Stockholm for Myalgic Encephalomyelitis (ME) in line with the National Board of Health and Welfare's catastrophic and patient-unsafe knowledge support.
Read more on my blog (Google translated)...
Thank you! I find it hard to assess, but that is what I hope for. I personally do not have the capacity to dig, write, and manage the media at the same time. So I am hoping for support from others. Unfortunately, we also have a strong culture of silence in large parts of the ME community in...
Episode 11. Season Finale. In addition to me telling you about how I think we need to handle the situation that has arisen, you can follow behind the scenes in a Swedish (problematic) research study.
To Maran podcast...
Episode 10. Today's episode is about SBU's pseudoscientific assumptions and the National Board of Health and Welfare's catastrophic treatment recommendations.
To Maran podcast:
https://podcasters.spotify.com/pod/show/eremiten/episodes/S2A10-Nr-pseudovetenskap-styr-e2oalhh
To the blog where you...
Episode 9. Today I delve deep into SBU's knowledge compilation on post-infectious diseases - or perhaps even more into what is missing from it.
To Maran podcast:
https://podcasters.spotify.com/pod/show/eremiten/episodes/S2A9-Vad-myndigheterna-vljer-att-inte-bertta-e2oal0i
To the blog where you...
Episode 8. In today's episode, I talk about how SBU and Socialstyrelsen (the National Board of Health and Welfare) have failed in their government mission to map and compile knowledge about post-infectious diseases.
To Maran podcast...
But this tweet from inquest says that that ”Copy of findings will be provided but some types will be corrected over the weekend to anyone that wants it.”
Episode 7. We take an even greater step back in history in today's episode and examine how prejudices about the medically unexplained throughout history have interfered with the advances of medical science.
To Maran podcast...
Episode 6. In today's Maran, you get an overview of the Swedish branch of the Oslo Chronic Fatigue Consortium. We examine what they have done and are doing, and what it says about their view of ME and post-covid.
To Maran podcast...
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